Don't Forget to Remember
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- Reviews
- Citation
- Cataloging
- Transcript
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A deeply moving film exploring memory, love, and resilience in the face of Alzheimer's. Renowned artist Asbestos invites viewers into an intimate journey through his mother's experience with the disease, capturing both the fragility of memory and the enduring beauty of family bonds.
Citation
Main credits
Killeen, Ross (film director)
Byrne, Louise (film producer)
Asbestos (on-screen participant)
Other credits
Cinematography, Narayan Van Maele; editing, Vincent McEntee; music, James Latimer; animation, Asbestos.
Distributor subjects
Alzheimer's Disease / Dementia; Ireland; Aging; Family Issues; Art and Music TherapyKeywords
00:00:28.583 --> 00:00:30.125
[Matt] Sixteen down.
00:00:34.000 --> 00:00:37.333
“When you start to tell somebody about
a fairytale, what would you say?”
00:00:37.417 --> 00:00:39.042
[Helena] A fairytale?
00:00:40.667 --> 00:00:42.458
[Matt] If you were sitting down with the children,
00:00:42.542 --> 00:00:45.292
you’re going to tell them a fairytale,
how would you start it?
00:00:47.167 --> 00:00:49.292
Once…
00:00:49.417 --> 00:00:50.833
Upon a time.
00:00:50.917 --> 00:00:52.167
Isn't it?
00:00:54.667 --> 00:00:56.250
Once upon a time.
00:01:13.458 --> 00:01:15.125
[Helena] I'm trying to remember.
00:01:18.500 --> 00:01:19.792
It was…
00:01:21.833 --> 00:01:23.333
It was…
00:01:27.125 --> 00:01:28.833
[Peter] You look very happy together.
00:01:30.083 --> 00:01:31.792
What age were you back then?
00:01:34.083 --> 00:01:37.250
[Helena] My mother was from…
00:01:40.167 --> 00:01:42.167
I'm trying to think if…
00:01:44.792 --> 00:01:47.250
-[Helena] What's her name?
-[Matt] 1970.
00:01:48.708 --> 00:01:49.708
September.
00:01:50.542 --> 00:01:51.625
Where was it?
00:01:52.125 --> 00:01:53.917
[Peter] There’s the two of you.
00:01:54.000 --> 00:01:58.875
[Helena] I'm trying to say that when I had taken…
00:02:01.042 --> 00:02:03.000
[Matt] Billy and Peter, what
did you do with them?
00:02:03.292 --> 00:02:04.792
You reared them, yeah.
00:02:04.917 --> 00:02:07.250
[Helena] It's years, so many years.
00:02:07.583 --> 00:02:08.750
[Peter] She looks very happy.
00:02:09.250 --> 00:02:10.500
[Helena] She was always…
00:02:10.583 --> 00:02:12.417
I'm trying, I'm trying to think back.
00:02:12.625 --> 00:02:14.125
[Matt] Too long ago, wasn't it?
00:02:16.125 --> 00:02:20.417
[Helena] It comes back to me
at times, what happened.
00:02:21.500 --> 00:02:23.125
[Matt] You don't remember who that is?
00:02:24.375 --> 00:02:27.167
-[Peter] Cool teenager.
-[Helena] When Peter was…
00:02:29.167 --> 00:02:31.208
[Peter] I think you showed it
to me before, years ago.
00:02:31.792 --> 00:02:33.625
[Helena] No, it lingers on.
00:03:02.000 --> 00:03:05.083
[Peter] This is going to be true and false.
00:03:08.292 --> 00:03:10.667
This is an exploration of my feelings,
00:03:10.833 --> 00:03:13.167
so it's not always going to make sense.
00:03:38.417 --> 00:03:39.375
Alright.
00:04:05.500 --> 00:04:07.000
Will we do the crossword?
00:04:07.333 --> 00:04:08.583
Alright?
00:04:18.167 --> 00:04:20.833
“It contains most of
the Earth's population.”
00:04:20.958 --> 00:04:22.292
Four letters.
00:04:22.500 --> 00:04:25.833
Now, the second letter
is S, and the last letter is A.
00:04:25.917 --> 00:04:27.458
What are the continents?
00:04:27.625 --> 00:04:32.292
You've America, you've
Europe, South America.
00:04:32.958 --> 00:04:34.417
And what's the other one?
00:04:38.458 --> 00:04:39.833
Besides Europe?
00:04:43.000 --> 00:04:45.167
Starts with an A, A-S.
00:04:46.333 --> 00:04:47.625
Four letters.
00:04:48.917 --> 00:04:54.500
You have Europe, North America,
South America, Australia.
00:04:54.792 --> 00:04:56.375
And what's the last one?
00:04:58.917 --> 00:05:00.458
Asia, isn't it?
00:05:02.208 --> 00:05:04.208
-Isn't it?
-I don't know.
00:05:04.542 --> 00:05:05.833
I think it is, anyway.
00:05:05.917 --> 00:05:07.375
Well, it fits.
00:05:09.000 --> 00:05:11.333
-What?
-It fits.
00:05:17.250 --> 00:05:19.708
“Reserved and uncommunicative.”
00:05:19.917 --> 00:05:21.583
You're being very
uncommunicative at the moment, Helena.
00:05:21.667 --> 00:05:23.458
Come on. You have to get into this.
00:05:23.583 --> 00:05:25.375
[Matt and Helena laugh]
00:05:27.083 --> 00:05:28.750
-Getting lazy.
-What?
00:05:28.833 --> 00:05:31.208
-Getting lazy.
-You certainly are.
00:05:33.708 --> 00:05:35.167
You certainly are.
00:05:38.417 --> 00:05:40.000
[Matt] We got that one,
didn't we? “A prison term.”
00:05:40.042 --> 00:05:41.042
We did, yeah.
00:05:42.125 --> 00:05:43.958
I think we're stuck at this stage, Helena.
00:05:44.833 --> 00:05:46.000
So we are.
00:05:47.667 --> 00:05:50.667
-[Matt] We're not doing too good.
-[Helena] No, we're not.
00:05:55.125 --> 00:05:57.958
[Matt] “A woman in relation to her child.”
00:06:00.208 --> 00:06:02.292
What would you call--
00:06:02.375 --> 00:06:05.333
What would you call
the woman that was related to a child?
00:06:05.875 --> 00:06:07.500
Starts with an M.
00:06:14.042 --> 00:06:18.375
[Peter] What's been happening
to my mum is shocking and scary.
00:06:20.000 --> 00:06:22.500
I'm both experiencing it,
00:06:22.625 --> 00:06:27.708
but also almost observing it as well,
and it kind of feels distant at times.
00:06:35.667 --> 00:06:40.542
Losing your memory
is like watching a bullet
00:06:42.042 --> 00:06:45.833
in slow-mo for years coming
towards you, and you can't avoid it.
00:06:51.875 --> 00:06:54.333
So much is actually about recounting memory…
00:06:57.375 --> 00:06:59.333
and about shared memories.
00:07:05.833 --> 00:07:10.958
And only with your memories
are you able to construct who you are.
00:07:12.375 --> 00:07:14.750
-[Matt] Who is it?
-[Helena] Peter.
00:07:14.917 --> 00:07:17.000
[Matt] Where? Which is Peter?
00:07:17.167 --> 00:07:18.000
Yeah.
00:07:19.000 --> 00:07:21.458
-[Helena] What year?
-[Peter] 1979.
00:07:22.625 --> 00:07:24.000
[Helena] Peter and Billy.
00:07:25.542 --> 00:07:27.542
-[Helena] And me.
-[Matt] Do you not remember who that is?
00:07:29.292 --> 00:07:31.042
[Helena] I'm trying to…
00:07:33.125 --> 00:07:35.167
[Peter] You're almost asking the
question, “who is this person?”
00:07:35.250 --> 00:07:36.917
because they’ve changed so much, and
00:07:37.000 --> 00:07:39.875
then you catch glimpses of
her, her way of saying things
00:07:40.000 --> 00:07:42.625
and then suddenly you're like,
well, she is still there.
00:07:44.167 --> 00:07:45.250
Do you remember this?
00:07:46.750 --> 00:07:48.333
What age were you back then?
00:07:48.625 --> 00:07:50.042
[Helena] I'm trying to think.
00:07:50.958 --> 00:07:52.917
-It looks as if you're…
-15.
00:07:53.750 --> 00:07:55.000
Yeah, you probably were.
00:07:56.833 --> 00:07:59.417
What do you think was going
through your mind at the time?
00:08:07.458 --> 00:08:09.708
-See it with the light.
-Yeah.
00:08:11.708 --> 00:08:13.292
Yeah, you were very cool.
00:08:13.375 --> 00:08:14.583
Cool teenager.
00:08:21.375 --> 00:08:26.167
[Peter] Thinking about and
processing the relationship with my mum
00:08:28.125 --> 00:08:34.000
the art side of my life has
suddenly become a form of therapy.
00:09:02.667 --> 00:09:08.125
My work is very much about
discovery of what the self means.
00:09:09.583 --> 00:09:14.625
I'm trying to really provoke and
push my own sense of vulnerability
00:09:14.958 --> 00:09:18.083
and create multiple characters,
00:09:18.167 --> 00:09:21.708
multiple versions of
myself that can tell different stories.
00:09:27.333 --> 00:09:32.750
The driving force behind that is
pointing in a direction of how I can have
00:09:32.833 --> 00:09:35.250
a communication, a
conversation with the public.
00:09:39.375 --> 00:09:42.083
I'm trying to be as vulnerable as possible
00:09:42.167 --> 00:09:44.375
and to open up as much as possible,
00:09:44.458 --> 00:09:47.958
and the more that you open up and
the more that you become vulnerable,
00:09:48.000 --> 00:09:49.833
the more that people open up with you.
00:09:57.583 --> 00:09:59.375
When you create these characters,
00:09:59.458 --> 00:10:02.333
they have a huge amount of
me in them but they also
00:10:02.417 --> 00:10:07.083
have other people. They also
have my past, my present.
00:10:11.792 --> 00:10:17.042
I've never approached my work as
purely me as an individual,
00:10:18.917 --> 00:10:23.208
even though I put all of my emotion and
honesty and vulnerability out there.
00:10:24.083 --> 00:10:27.667
But this kind of isn't about me,
really. It’s about somebody else.
00:10:34.542 --> 00:10:36.583
There's so many
conversations I'd love to have and
00:10:36.667 --> 00:10:39.792
so many things that I just would
love to have found out about her.
00:10:44.750 --> 00:10:47.208
I don't think we ever properly had a
00:10:48.292 --> 00:10:52.708
conversation as two grown adults
in the way that I'd like to have had.
00:10:54.208 --> 00:10:56.458
It would have been great
to have these conversations
00:10:56.542 --> 00:10:57.958
but I never really did.
00:12:00.375 --> 00:12:02.542
-[Peter] Oh, God.
-[Helena laughs]
00:12:03.042 --> 00:12:04.917
It's a tad embarrassing, isn't it?
00:12:06.750 --> 00:12:08.250
I think it's funny.
00:12:14.333 --> 00:12:15.833
[Peter] There's the two of you.
00:12:18.667 --> 00:12:20.042
Do you remember the day?
00:12:21.000 --> 00:12:21.917
[Helena] I do.
00:12:24.042 --> 00:12:25.875
-And I made my dress.
-You did?
00:12:26.083 --> 00:12:26.750
Yeah.
00:12:27.667 --> 00:12:29.083
How long did that take?
00:12:30.417 --> 00:12:32.000
Not very…
00:12:34.042 --> 00:12:35.417
You were pretty quick.
00:12:42.250 --> 00:12:44.333
-Look at that one.
-Yeah.
00:12:44.500 --> 00:12:46.667
-Oh, yeah.
-That was in Ibiza.
00:12:46.708 --> 00:12:48.583
Okay, so that's when you arrived.
00:12:48.625 --> 00:12:50.292
-Yeah.
-Look at the stylish pair.
00:12:50.375 --> 00:12:53.917
And she actually made that
outfit herself as well.
00:12:54.000 --> 00:12:55.667
-Did you?
-Yeah.
00:12:58.042 --> 00:12:59.792
Wow. Very stylish.
00:13:02.625 --> 00:13:04.375
Where did you learn that, then?
00:13:04.458 --> 00:13:05.500
Did you…
00:13:07.000 --> 00:13:09.583
-How do you mean?
-To learn dressmaking?
00:13:12.292 --> 00:13:14.167
Did you do a course?
You did a course.
00:13:14.292 --> 00:13:17.125
Oh, I did. I forgot about that.
00:13:18.667 --> 00:13:21.625
Completely. It…
00:13:24.792 --> 00:13:27.292
-Is that Conor?
-It is, yeah.
00:13:33.958 --> 00:13:37.167
Do you remember the course then?
That you were doing in…
00:13:41.667 --> 00:13:43.583
Too long ago, wasn't it?
00:13:44.875 --> 00:13:46.833
Yeah, the dresses were great.
00:13:47.542 --> 00:13:49.250
You'll have to teach me someday.
00:14:24.208 --> 00:14:31.125
[Helena] I met him in one of the
dance halls, or something.
00:14:34.000 --> 00:14:35.875
He was different.
00:14:38.875 --> 00:14:44.625
Because a lot of them at that
time would have, just, go.
00:15:02.625 --> 00:15:05.542
My mother, she liked him.
00:15:11.417 --> 00:15:16.833
It was at the airport that we got married.
00:15:23.708 --> 00:15:25.792
A lot of people were saying,
00:15:25.875 --> 00:15:29.125
"You'll have to do this”
and “You’ll have to do that.”
00:15:30.542 --> 00:15:32.625
Which I didn't do.
00:15:38.042 --> 00:15:41.375
We went away for a while
00:15:42.667 --> 00:15:43.958
and…
00:15:46.958 --> 00:15:50.000
just took off then.
00:15:56.417 --> 00:15:59.000
I'm trying to remember but I…
00:16:03.958 --> 00:16:07.042
It was summer and sunny.
00:16:44.417 --> 00:16:45.583
[Matt] Okay.
00:16:45.625 --> 00:16:46.958
You got it?
00:16:47.417 --> 00:16:48.792
I don't know.
00:16:48.875 --> 00:16:50.417
-Don't go…
-No, no, no.
00:16:50.500 --> 00:16:51.583
It's okay.
00:16:57.833 --> 00:16:59.250
-There you are.
-Okay.
00:17:00.750 --> 00:17:03.375
Oh, I can't breathe.
[Helena giggles]
00:17:06.625 --> 00:17:09.208
Yeah, that's it. You don't
need anything else.
00:17:13.458 --> 00:17:15.000
Get your glasses.
00:17:17.875 --> 00:17:19.125
There you are.
00:17:29.625 --> 00:17:32.333
[Matt] Do you remember Peter,
when he was only four or five?
00:17:35.750 --> 00:17:38.167
Billy would fill the bucket
and he'd make a sandcastle.
00:17:38.833 --> 00:17:42.000
But Peter wouldn't use the bucket at all.
00:17:42.083 --> 00:17:43.958
He'd build up little walls, and then
00:17:44.000 --> 00:17:48.042
he’d wait for the water to come in
and to go around it as well, too.
00:17:49.125 --> 00:17:51.958
All the time looking to
do something different.
00:17:54.542 --> 00:17:58.917
As a kid he used to do a bit of painting
as well, too, but he wasn't that much into it.
00:18:00.292 --> 00:18:02.500
-You remember that?
-[Helena] I do.
00:18:04.500 --> 00:18:08.833
And do you remember when he told us that
he was doing some street art?
00:18:10.042 --> 00:18:12.042
You weren't too happy, sure you weren't?
00:18:16.958 --> 00:18:18.583
Why weren't you too happy?
00:18:19.208 --> 00:18:20.750
Do you remember?
00:18:20.792 --> 00:18:22.083
Yeah.
00:18:26.583 --> 00:18:28.042
When he was doing the painting, do you remember
00:18:28.125 --> 00:18:30.208
he was painting the
walls and everything as well too?
00:18:30.792 --> 00:18:33.000
And you said it was
like graffiti, you know?
00:18:33.083 --> 00:18:36.167
-Yeah.
-And that it shouldn't be done.
00:18:38.500 --> 00:18:40.042
And I was a bit the same as well, too.
00:18:40.125 --> 00:18:44.042
But then when he explained to us
what he was doing and the way he did it.
00:18:44.292 --> 00:18:47.167
He used to actually get pieces of timber,
00:18:47.250 --> 00:18:51.125
basically, out of skips, and he'd paint on
the timber and then put it up on the wall.
00:18:51.500 --> 00:18:53.958
He actually wasn't painting on the wall at the time
00:18:54.792 --> 00:18:56.625
unless he got permission.
00:18:57.083 --> 00:18:58.958
But even as a kid, I mean,
00:18:59.000 --> 00:19:01.833
he was always looking to do
something different, wasn't he?
00:19:01.958 --> 00:19:03.083
Always.
00:19:05.000 --> 00:19:06.125
Always.
00:19:09.417 --> 00:19:11.042
But he's still at it.
00:19:11.125 --> 00:19:12.083
Yeah.
00:19:32.958 --> 00:19:35.125
[Peter] The way people think about Alzheimer's
00:19:35.208 --> 00:19:37.792
is the destruction of a person,
something falling apart.
00:19:42.917 --> 00:19:45.833
People are terrified of it, absolutely terrified of it,
00:19:45.917 --> 00:19:48.292
because when they meet somebody with Alzheimer's,
00:19:48.375 --> 00:19:51.333
they think about themselves in that situation,
00:19:51.458 --> 00:19:54.000
losing their own memories, and
there's a terror around that.
00:19:57.500 --> 00:20:00.625
You can be scared of getting sick, but actually losing
00:20:00.708 --> 00:20:04.125
your memories is kind of heart-stopping.
00:20:54.042 --> 00:20:55.667
-Hey.
-How are you?
00:20:55.750 --> 00:20:57.458
Very good. Can you take that?
00:20:58.083 --> 00:21:01.583
So these are the bits from the skip.
00:21:03.458 --> 00:21:06.000
I don't know how we'll cut
these down, but use some of the--
00:21:06.042 --> 00:21:08.042
-You want me to cut these into thin strips?
-Yeah.
00:21:08.125 --> 00:21:11.792
So for some of the smaller ones, and then…
00:21:12.750 --> 00:21:15.875
just probably stain them down.
00:21:16.083 --> 00:21:18.250
I was talking to my daughter about doing this actually,
00:21:18.333 --> 00:21:20.833
and she asked me what a blackboard was.
00:21:21.417 --> 00:21:22.375
No. Really?
00:21:22.417 --> 00:21:23.625
-Well, they don't have them.
-There's none in schools whatsoever?
00:21:23.708 --> 00:21:25.208
There's none. No idea.
00:21:25.250 --> 00:21:27.000
She's 12. She didn't know what it was.
00:21:27.000 --> 00:21:28.125
Wow.
00:23:38.417 --> 00:23:41.500
I don't say I'm exhausted, I say I’m weary.
00:23:42.750 --> 00:23:45.500
I mean the days are long
as you can… and you know that.
00:23:45.583 --> 00:23:48.750
I mean this is what you've
related to me time and time again.
00:23:49.250 --> 00:23:51.250
And that, you know, I say
00:23:51.333 --> 00:23:54.500
I can talk to Helena but I
can't have a conversation with her.
00:23:56.500 --> 00:23:58.375
I mean, I have my good--
00:23:58.458 --> 00:24:01.208
I have my bad spells, but
not as bad now as normal.
00:24:03.000 --> 00:24:06.125
I'm a lot more in control of myself, really, you know?
00:24:12.042 --> 00:24:13.958
You're due a visit.
00:24:18.333 --> 00:24:20.167
Alright. Okay.
00:24:20.833 --> 00:24:22.125
Okay.
00:24:24.750 --> 00:24:26.833
That's great, and listen now also as well too,
00:24:26.917 --> 00:24:31.875
I need to talk to the district nurse
in regards to respite as well, too.
00:24:36.333 --> 00:24:37.583
God bless and thank you.
00:24:37.667 --> 00:24:38.500
Bye-bye.
00:24:53.042 --> 00:24:54.792
“Paralysing fear.”
00:24:54.875 --> 00:24:56.292
Six letters.
00:24:59.208 --> 00:25:00.542
Starts with a T.
00:25:02.625 --> 00:25:03.708
T-E.
00:25:05.500 --> 00:25:07.250
You're frightened. Fear.
00:25:07.875 --> 00:25:10.083
What's another word for frightening?
00:25:12.458 --> 00:25:13.625
Terror.
00:25:20.708 --> 00:25:22.542
You're not helping me here, Helena.
00:25:25.167 --> 00:25:26.667
We should get that one.
00:25:26.958 --> 00:25:28.625
“Classical dance form.”
00:25:29.667 --> 00:25:31.667
Don’t know. Five, six letters.
00:25:32.500 --> 00:25:35.125
I don't know, so I can’t help you.
00:25:37.625 --> 00:25:39.583
And you can't help me.
00:25:46.542 --> 00:25:53.458
[indistinct radio]
00:26:05.750 --> 00:26:07.375
[Matt] This one, Helena. Now.
00:26:07.458 --> 00:26:08.458
Twenty-one down.
00:26:09.750 --> 00:26:13.917
“One who suffers from memory loss.”
[Matt and Helena laugh]
00:26:15.625 --> 00:26:17.083
That me, is it?
00:26:17.750 --> 00:26:19.708
“One who suffers from memory loss.”
00:26:21.500 --> 00:26:23.042
What is it? Starting with A.
00:26:23.125 --> 00:26:24.292
A-L.
00:26:28.333 --> 00:26:30.792
-Everything all right, Helena?
-On the road.
00:26:31.250 --> 00:26:33.375
-It's a lovely morning, isn't it?
-Yeah.
00:26:34.375 --> 00:26:35.417
A lovely morning.
00:26:38.917 --> 00:26:40.333
[Peter] How has she been recently?
00:26:42.125 --> 00:26:44.125
[Matt] Getting through it, as the fellow says.
00:26:44.458 --> 00:26:45.542
[Peter] Yeah.
00:26:46.292 --> 00:26:47.375
[Matt] That's the way it is.
00:26:48.042 --> 00:26:49.458
That's going way back.
00:26:50.542 --> 00:26:52.125
[Peter] You're surprised she's forgetting things
00:26:52.208 --> 00:26:54.542
and also surprised what
she remembers as well.
00:26:57.042 --> 00:27:00.375
-[Helena] She was an awful snob.
-[Matt] She was, yeah.
00:27:01.333 --> 00:27:02.708
She sure was.
00:27:05.542 --> 00:27:07.792
-[Peter] It's kind of scary.
-[Matt] It is scary.
00:27:07.875 --> 00:27:09.750
[Peter] It's not kind of scary. It is scary.
00:27:09.833 --> 00:27:13.250
[Matt] It is scary, and, I mean, it's
very hard to comprehend that.
00:27:17.458 --> 00:27:19.333
Do you want to have a quick look at that, no?
00:27:21.042 --> 00:27:22.583
See that you might, you might.
00:27:22.667 --> 00:27:23.458
No.
00:27:25.917 --> 00:27:27.792
Oh, right. No harm in looking at it.
00:27:29.542 --> 00:27:31.708
“Not at home.” Four letters.
00:27:32.792 --> 00:27:34.208
[Helena] Out.
00:27:34.292 --> 00:27:35.667
[Matt] No, four letters.
00:27:49.375 --> 00:27:51.000
Do you want to watch the racing?
00:27:52.542 --> 00:27:54.833
-Not particularly.
-No, that’s okay.
00:27:56.500 --> 00:27:58.708
“It's gone. It's amiss.”
00:27:58.792 --> 00:28:00.458
Four letters, starting with L.
00:28:01.875 --> 00:28:03.208
What would you call it?
00:28:05.083 --> 00:28:07.708
-[Helena] Amiss.
-[Matt] No, starting with L. Something’s gone.
00:28:07.792 --> 00:28:08.667
It's amiss.
00:28:11.333 --> 00:28:12.500
Starting with L.
00:28:15.458 --> 00:28:16.500
It's gone.
00:28:17.917 --> 00:28:18.917
Lost.
00:28:39.625 --> 00:28:43.333
[Helena] Going on holidays and getting a break.
00:28:44.542 --> 00:28:46.708
You're bigger than the mountain, Matt.
00:28:57.667 --> 00:28:59.625
[Helena] We went to America.
00:29:01.625 --> 00:29:04.292
My mother had a sister.
00:29:05.250 --> 00:29:08.625
This is the town of
John, San Juan Batista.
00:29:10.000 --> 00:29:11.250
It's a very quaint town.
00:29:11.292 --> 00:29:12.417
[Helena] It was--
00:29:13.333 --> 00:29:14.792
[Matt] Helena said I should
give a commentary
00:29:14.875 --> 00:29:16.500
and that this is the island of Alcatraz.
00:29:16.583 --> 00:29:19.667
Helena said this is the Golden Gate
Bridge, and I think she's right.
00:29:20.000 --> 00:29:21.042
[Helena] They were…
00:29:23.000 --> 00:29:24.125
It was in--
00:29:24.167 --> 00:29:27.250
You can hear the seals
in San Francisco Harbour.
00:29:29.208 --> 00:29:30.708
San Francisco Bay.
00:29:31.542 --> 00:29:33.917
[Helena] It's years, so many years.
00:29:35.125 --> 00:29:36.833
I'm trying to think back.
00:29:37.917 --> 00:29:40.208
Matt missing the eighteenth hole.
00:29:41.833 --> 00:29:45.375
-Hey, erase that film.
-[Helena laughs]
00:29:59.250 --> 00:30:01.458
[Peter] Everyone has multiple masks.
00:30:03.875 --> 00:30:05.875
When we're with our
friends, we're one thing.
00:30:05.958 --> 00:30:07.542
When we're with our parents.
00:30:07.708 --> 00:30:12.333
Every relationship that we
have is acting out a role.
00:30:15.500 --> 00:30:18.792
And I think that has confronted me
00:30:18.958 --> 00:30:22.958
like a truck with my mum and
that sense of who we are.
00:30:54.708 --> 00:30:56.333
[Peter] Remember this?
00:30:56.750 --> 00:30:58.042
[Helena laughs]
Yeah.
00:31:00.500 --> 00:31:04.000
I love the way every time you see a
picture of me when I was a kid, you laugh.
00:31:04.083 --> 00:31:07.458
-I do not.
-You do. Every single time.
00:31:12.792 --> 00:31:14.083
That was my first day.
00:31:15.875 --> 00:31:17.125
Oh, my God.
00:31:17.917 --> 00:31:19.458
I was drawing that today.
00:31:20.625 --> 00:31:23.125
I was, yeah. I was doing
a chalk drawing of it.
00:31:24.958 --> 00:31:27.250
-Were you?
-Yeah, it's in the car. Did you not see it?
00:31:27.333 --> 00:31:29.292
-No.
-It's in the back seat of the car.
00:31:33.417 --> 00:31:35.042
I'll show you when we go back--
00:31:35.125 --> 00:31:36.792
This is what they…
00:31:38.875 --> 00:31:40.333
-The smock.
-The smock.
00:31:40.417 --> 00:31:42.917
-Yeah. They're cool, aren't they?
-Yeah.
00:31:43.417 --> 00:31:45.417
-And the glasses.
-Yeah.
00:31:46.000 --> 00:31:47.417
I need them now, actually.
00:31:47.500 --> 00:31:49.333
-I need to get glasses now.
-Who?
00:31:49.375 --> 00:31:50.958
-Me.
-You?
00:31:51.000 --> 00:31:52.667
-Yeah.
-Oh.
00:31:53.167 --> 00:31:55.458
My eyes are getting worse. Getting old.
00:31:58.458 --> 00:32:02.750
I'm doing a load of
drawings of old photographs.
00:32:04.375 --> 00:32:06.375
That's one of them. That's the first one.
00:32:07.292 --> 00:32:08.792
Look at the dog.
00:32:13.833 --> 00:32:15.500
You'll have to come and see them.
00:32:33.375 --> 00:32:37.708
[Peter] I was very close to my mum when
I was a younger kid and teenager.
00:32:37.833 --> 00:32:41.958
And I think as I got older
and left college, I kind of
00:32:42.417 --> 00:32:47.542
forged my own way and
wasn't focused on my family as much.
00:32:56.667 --> 00:33:00.625
We often disagreed on stuff, and I think
we disagreed on it probably because
00:33:00.750 --> 00:33:04.750
she was probably trying to reconnect
with a younger version of me,
00:33:04.917 --> 00:33:08.625
and I was trying to establish a new version of me with
00:33:08.708 --> 00:33:11.083
my own opinions and outlook in life.
00:33:11.708 --> 00:33:15.750
And I think I kind of pushed back
against that when I was older,
00:33:16.667 --> 00:33:18.542
and maybe pushed back too much.
00:33:24.208 --> 00:33:27.125
The last big chat with her was years ago.
00:33:28.292 --> 00:33:30.167
My dad instigated it because I was
00:33:30.250 --> 00:33:32.667
constantly finding fault and being dismissive.
00:33:34.083 --> 00:33:35.375
[Matt] There's a hole in the roof.
00:33:36.250 --> 00:33:38.333
But Peter said it doesn't rain here at all.
00:33:38.458 --> 00:33:39.833
Said don't worry about it.
00:33:43.042 --> 00:33:44.542
[Peter] She was a worrier.
00:33:46.958 --> 00:33:49.083
And I was very harsh about that.
00:34:06.375 --> 00:34:09.500
[Matt] ...how he comes up with these ideas
and how he does achieve them.
00:34:09.625 --> 00:34:10.667
It's just amazing…
00:34:22.500 --> 00:34:24.125
[Helena] When I go out…
00:34:26.958 --> 00:34:30.583
At times it…
00:34:38.250 --> 00:34:41.458
At times, it comes back to me.
00:34:45.292 --> 00:34:47.792
I was going out.
00:34:50.333 --> 00:34:56.250
I had Peter. I had Billy as well, and…
00:34:59.750 --> 00:35:01.958
Coming around towards…
00:35:07.250 --> 00:35:08.583
As you go around to…
00:35:13.167 --> 00:35:14.417
The bomb.
00:35:25.500 --> 00:35:27.875
[News Reporter] Good evening.
As you just heard on the news,
00:35:27.958 --> 00:35:30.458
fifteen people killed in the Dublin car bombs
00:35:30.542 --> 00:35:32.500
and four killed in Monaghan.
00:35:35.833 --> 00:35:37.208
[Helena] It was terrifying.
00:35:37.458 --> 00:35:40.208
[Witness] There was people thrown right across
here, right in the centre of the road.
00:35:40.292 --> 00:35:43.083
The whole place just turned grey
with metal flying all over the place.
00:35:43.458 --> 00:35:45.417
[Helena] It took an awful lot out of me.
00:35:45.500 --> 00:35:46.875
[Witness] Just chaotic, when they go off…
00:35:46.958 --> 00:35:47.917
The men, women, and children.
00:35:48.000 --> 00:35:50.292
Screaming and roaring and everything.
It was just a ball of fire.
00:35:50.375 --> 00:35:52.292
It was just shocking altogether.
00:35:52.458 --> 00:35:54.500
[Helena] That's the biggest one.
00:35:57.833 --> 00:35:59.708
It lingers on.
00:36:02.917 --> 00:36:03.958
Peter.
00:36:06.167 --> 00:36:08.250
He wouldn't have been here.
00:36:19.875 --> 00:36:22.333
[Peter] It might be over simplistic, but
00:36:23.250 --> 00:36:26.375
after she was nearly caught in
the Dublin Monaghan bombings,
00:36:26.458 --> 00:36:30.250
all those worries kind of build and
build and build, and she was
00:36:30.333 --> 00:36:35.542
probably anxious for reasons of
wanting the best for her kids.
00:36:46.542 --> 00:36:47.667
She'll suffer.
00:36:49.833 --> 00:36:52.583
With her hair. Well done.
00:36:54.167 --> 00:36:55.375
Good show.
00:37:00.083 --> 00:37:02.833
[Peter] My mum was just one of those people who,
00:37:03.292 --> 00:37:08.042
I suppose, over the years,
gave a lot of herself to other people.
00:37:09.208 --> 00:37:11.333
[Helena] Do you want to get in here?
00:37:12.667 --> 00:37:16.542
[Peter] And I think that was partly her,
what she saw or might have seen
00:37:16.625 --> 00:37:19.917
as a role, to be
somebody there for other people.
00:37:20.208 --> 00:37:22.708
I don't know if she was
there for herself, really.
00:37:22.750 --> 00:37:23.875
Oh, my gosh.
00:37:23.917 --> 00:37:26.708
-What is it, burning rice?
-I have a curse.
00:37:26.833 --> 00:37:28.125
You're burning rice--
00:37:28.208 --> 00:37:30.500
-How could you burn rice?
-I've never burned rice.
00:37:30.583 --> 00:37:31.708
You burn carrots, though.
00:37:31.792 --> 00:37:34.708
Does anyone have any better
stories about my cooking?
00:37:36.250 --> 00:37:37.917
I think that's a no.
00:37:44.958 --> 00:37:46.083
Is that okay?
00:37:48.042 --> 00:37:50.083
[Peter] Weirdly, with her Alzheimer's,
00:37:50.167 --> 00:37:55.667
there’s this layer of worry
that I think has lifted off her.
00:37:57.250 --> 00:38:01.125
People can get aggressive, can
get violent, can get angry.
00:38:01.958 --> 00:38:05.708
But for her, she's
really happy at the moment.
00:38:08.208 --> 00:38:09.583
Dangerous.
00:38:11.500 --> 00:38:13.958
[Peter] But is it her anymore?
00:38:17.292 --> 00:38:20.208
-Look at how shaky my hands are.
-Try this below one, there.
00:38:20.292 --> 00:38:21.542
-Yeah, that one there.
-This one?
00:38:21.625 --> 00:38:24.208
-Yeah, pull that one out.
-Keep pulling it out.
00:38:25.750 --> 00:38:27.417
Now you have to put it on top.
00:38:27.792 --> 00:38:29.042
I don't want it.
00:38:31.292 --> 00:38:32.625
The one on the bottom.
00:38:32.708 --> 00:38:33.875
Okay, who's next?
00:38:35.625 --> 00:38:36.542
Daddy!
00:38:38.583 --> 00:38:39.875
You lose!
00:38:42.167 --> 00:38:43.333
Very good.
00:39:00.542 --> 00:39:02.292
And do a silly face.
00:39:15.792 --> 00:39:16.958
Perfect.
00:39:23.833 --> 00:39:25.167
Did you enjoy that?
00:39:29.333 --> 00:39:30.917
Okay. You’re done.
00:39:31.000 --> 00:39:32.250
Get out of here.
00:40:28.875 --> 00:40:31.333
-[Helena] What are we doing?
-[Matt] We’re going to get into the car.
00:40:31.458 --> 00:40:32.458
[Helena] And what?
00:40:36.792 --> 00:40:39.875
[Matt] Into the car, and we'll head then.
00:40:43.083 --> 00:40:44.292
I'll get it for you now.
00:40:58.958 --> 00:41:01.042
[Matt] I'll collect you later on now, okay?
00:41:01.083 --> 00:41:03.375
-You will not.
-Sorry?
00:41:03.458 --> 00:41:04.958
-You will not.
-I will, yeah.
00:41:05.000 --> 00:41:06.792
No, I'll come back, yeah.
00:41:06.833 --> 00:41:08.042
You won't.
00:41:09.042 --> 00:41:10.333
You will.
00:41:10.417 --> 00:41:11.792
Yeah, absolutely.
00:41:14.083 --> 00:41:16.458
-Now, Sebo.
-Morning, Helena.
00:41:16.583 --> 00:41:18.417
How are you?
00:41:19.083 --> 00:41:21.875
Good to see you. I'm taking over.
00:41:21.958 --> 00:41:24.542
Okay, Sebo. Okay, all the best.
00:41:24.583 --> 00:41:25.500
Bye, bye. Bye, Sebo.
00:41:25.583 --> 00:41:28.625
-Bye, bye, bye.
-I'll collect you later, okay?
00:41:28.875 --> 00:41:30.083
Good morning, everybody.
00:41:30.208 --> 00:41:31.750
How are we all doing?
00:41:31.792 --> 00:41:33.875
How was everyone's tea
and coffee this morning?
00:41:33.958 --> 00:41:35.792
-Great.
-Brilliant.
00:41:35.833 --> 00:41:37.125
We're going to do what
we do every morning.
00:41:37.167 --> 00:41:39.667
We're going to do a little exercise class.
00:41:40.125 --> 00:41:44.417
We're going to grip our baton like
this with our palms facing up, okay?
00:41:44.583 --> 00:41:48.917
And we're going to put our ribs--
our elbows, right into our ribs.
00:41:49.000 --> 00:41:51.458
-[Helena] Row, row, row your boat--
-[Staff] And what we're going to do is...
00:41:51.708 --> 00:41:56.625
We're going to move the baton to
under our chins and then back down.
00:41:56.708 --> 00:41:59.500
So up under our chins and back down.
00:41:59.708 --> 00:42:09.375
So one, two, three, four, five, six,
00:42:09.625 --> 00:42:15.292
seven, eight, nine, and ten…
00:42:38.167 --> 00:42:40.875
[Matt] When I bring her to the daycare,
00:42:41.000 --> 00:42:43.750
I feel that I'm letting her down.
00:42:45.917 --> 00:42:49.458
Should I be doing this? Should I not
be looking after her myself?
00:43:04.750 --> 00:43:07.417
When I look back ten, fifteen, twenty years ago
00:43:07.500 --> 00:43:11.750
and somebody said to me that
this is the situation we're going to be in,
00:43:12.250 --> 00:43:15.958
I don't think I'd be
able to comprehend it.
00:43:19.542 --> 00:43:23.333
In our relationship, we didn't have
an awful lot of time off together.
00:43:25.125 --> 00:43:29.125
I was gone in the morning and coming home
late, one or two o’clock in the morning
00:43:29.250 --> 00:43:31.875
basically, from the
pub and the restaurant trade.
00:43:32.583 --> 00:43:33.833
When you work for yourself,
00:43:33.917 --> 00:43:37.292
you put your shoulder to the wheel
and you just put in the hours.
00:43:41.833 --> 00:43:45.083
I always tried to get at least one day a week off
00:43:45.542 --> 00:43:49.542
so that we could go off and do
something with the lads and that as well, too.
00:43:50.833 --> 00:43:52.917
She adored her two sons,
00:43:53.000 --> 00:43:56.208
and anything that was to be done
for Billy and Peter, she done it.
00:43:56.458 --> 00:44:00.375
But she also helped
with the business as well too.
00:44:00.875 --> 00:44:03.667
She worked there during the day,
and she looked after the lads at night,
00:44:03.750 --> 00:44:05.500
in the evening times,
00:44:05.583 --> 00:44:08.583
and sacrificed a
lot from her own point of view.
00:44:10.917 --> 00:44:13.250
We worked well together.
00:44:13.333 --> 00:44:17.292
She was always there for me,
and she was always very supportive.
00:44:18.542 --> 00:44:20.583
And that's something that I miss.
00:44:27.417 --> 00:44:28.917
Go ahead, guys.
00:44:42.417 --> 00:44:44.250
[Staff] Now, Helena, I have something in here.
00:44:46.083 --> 00:44:48.708
-Can you recognise that?
-Oh, my God.
00:44:59.083 --> 00:45:03.292
Do you remember what was
the first clothes that you made?
00:45:03.417 --> 00:45:05.917
My wedding.
00:45:06.000 --> 00:45:08.000
Wedding dress? Was it the first one?
00:45:08.083 --> 00:45:10.333
-Yeah.
-Oh, my goodness.
00:45:10.625 --> 00:45:12.292
That's Matt and myself.
00:45:12.375 --> 00:45:15.000
Yeah, that's Matt and yourself. That's right.
00:45:15.167 --> 00:45:18.000
And you made that
costume as well, don't you?
00:45:18.083 --> 00:45:20.458
-I did.
-It's very nice, yeah.
00:45:21.542 --> 00:45:23.542
Was it very difficult to make?
00:45:24.000 --> 00:45:25.542
-Not really.
-Okay.
00:45:25.583 --> 00:45:27.792
And did you go to school
to learn how to make it?
00:45:27.875 --> 00:45:29.833
No. I just made it.
00:45:29.917 --> 00:45:32.333
Really? You're very talented.
00:45:33.333 --> 00:45:33.917
Not anymore--
00:45:33.958 --> 00:45:36.542
It's easier to do it when you
love something to do it, isn't it?
00:45:36.625 --> 00:45:38.083
-Yeah.
-Very nice.
00:45:38.167 --> 00:45:39.583
-It is.
-Yeah.
00:45:45.250 --> 00:45:46.917
Look at me.
00:45:58.125 --> 00:45:59.917
[Helena] I had a machine.
00:46:01.458 --> 00:46:03.167
A sewing machine.
00:46:05.667 --> 00:46:09.750
I liked making bits and pieces.
00:46:11.417 --> 00:46:13.750
Mainly dresses.
00:46:14.625 --> 00:46:18.292
And what else did I?
00:46:24.167 --> 00:46:30.417
When I made the dress,
everybody was surprised.
00:46:32.167 --> 00:46:33.917
People admired it.
00:46:52.125 --> 00:46:56.167
[Peter] Was that a pattern you used,
or was that your own design?
00:46:56.250 --> 00:46:57.708
-My own.
-Hmm?
00:46:57.792 --> 00:47:00.375
-My own.
-It was your own design?
00:47:01.375 --> 00:47:02.667
It was very cool.
00:47:02.708 --> 00:47:04.583
It was very Jackie Onassis.
00:47:12.958 --> 00:47:14.833
[Peter] That generation of mums,
00:47:14.917 --> 00:47:18.125
it was very difficult to be an individual.
00:47:21.125 --> 00:47:24.500
To step out of the norm or step out of the
00:47:24.542 --> 00:47:27.042
rhythm of the way other
people were doing things.
00:47:31.667 --> 00:47:35.542
There's probably hopes and dreams
that she had that never got realised.
00:50:21.458 --> 00:50:23.750
[Doctor] It's been a while since we did a focus on
00:50:23.833 --> 00:50:25.708
the memory and that side of things.
00:50:25.833 --> 00:50:28.208
Is it okay if we go through those
silly questions with you again
00:50:28.292 --> 00:50:30.750
just to see how things are today?
00:50:30.792 --> 00:50:32.667
Would that be okay with you? All right.
00:50:33.417 --> 00:50:36.167
Do you know what day of
the week it is today?
00:50:40.042 --> 00:50:41.917
-I haven't a clue.
-You don't have a clue.
00:50:42.000 --> 00:50:43.542
Alright. Do you know what month it is?
00:50:43.625 --> 00:50:44.917
Oh I do…
00:50:51.583 --> 00:50:53.292
Sure, it doesn't matter, does it?
00:50:53.542 --> 00:50:55.583
All right, last little bit now.
00:50:55.667 --> 00:50:57.417
I'm going to give you one minute,
00:50:57.500 --> 00:51:00.875
or rather, I'm going to do a
little bit of artwork here.
00:51:02.125 --> 00:51:03.750
I want you look at that circle.
Do you think you could
00:51:03.833 --> 00:51:07.917
think of it as face of a clock and
put the numbers in on the clock?
00:51:35.125 --> 00:51:37.542
Don’t worry about it. Will we leave it, Helena?
00:51:40.458 --> 00:51:43.875
For what it's worth, we last
did that more formal--
00:51:43.958 --> 00:51:45.833
-It's a long time ago.
-Yeah.
00:51:46.083 --> 00:51:47.958
It's close enough to 18 months ago.
00:51:48.500 --> 00:51:51.500
At that time, Helena,
when we asked her where she was,
00:51:51.583 --> 00:51:55.125
day of the week, all that stuff, she got
five of those ten questions right.
00:51:55.208 --> 00:51:56.125
-Okay.
-And today--
00:51:56.208 --> 00:51:58.542
-None.
-That's correct, yeah.
00:51:58.625 --> 00:52:01.250
And in spelling a word backwards,
00:52:01.333 --> 00:52:04.750
she actually gave me two
of the right letters the last time and
00:52:04.833 --> 00:52:07.125
none today, and I just thought towards the end
00:52:07.167 --> 00:52:09.458
I was upsetting her
really by pushing it on.
00:52:09.542 --> 00:52:11.167
So I think we'll park that.
00:52:11.333 --> 00:52:13.750
So I think what we're looking at is down the road,
00:52:13.875 --> 00:52:17.625
it will be the inability to provide the care she needs--
00:52:17.667 --> 00:52:19.500
-Okay. I'm with you.
-At home.
00:52:20.625 --> 00:52:22.875
I don't think you've arrived at that point yet
00:52:22.958 --> 00:52:26.083
but I think you're absolutely
right in doing the prep work,
00:52:26.125 --> 00:52:29.833
because with the best will in the world,
for most people, for most families,
00:52:29.917 --> 00:52:34.250
for practically everyone, there comes a point
where it stretches beyond what
00:52:34.333 --> 00:52:38.458
any one individual, even with
support of carers, can do.
00:52:39.792 --> 00:52:42.500
[Matt] Well, I'm coping at the moment.
00:52:42.583 --> 00:52:44.542
Okay. There are times when--
00:52:44.583 --> 00:52:50.333
I wouldn't say I get depressed,
but I question myself…
00:53:28.500 --> 00:53:30.500
[Matt] People say, “Well, you know,
00:53:30.583 --> 00:53:34.625
think about yourself, think about your own life,
of what you want and what you want to do.”
00:53:36.208 --> 00:53:41.208
But I would move mountains, basically,
if I felt that I could do anything more.
00:53:44.833 --> 00:53:48.042
As far as I'm concerned, the past is gone.
00:53:48.167 --> 00:53:50.208
I can't change that.
00:53:51.000 --> 00:53:55.333
She is the love of my
life, and we're still here.
00:54:07.083 --> 00:54:10.000
“Shook with fear or cold.”
00:54:12.917 --> 00:54:15.958
If you were shaking with fear
and cold, what would you be?
00:54:20.208 --> 00:54:21.667
Starting with T.
00:54:25.333 --> 00:54:28.250
-I know it.
-What's the word?
00:54:28.333 --> 00:54:32.917
Yeah. Tr-- Trem--
00:54:34.083 --> 00:54:35.458
Trembling.
00:54:47.750 --> 00:54:50.667
Here we are. This side.
00:55:06.250 --> 00:55:08.167
Put on your belt.
00:55:13.833 --> 00:55:15.333
There we are, now.
00:55:24.125 --> 00:55:28.167
Physically, she's very, very healthy,
which is a big advantage.
00:55:28.250 --> 00:55:30.375
-And she's still very, very calm.
-Yeah.
00:55:30.875 --> 00:55:35.625
But even yesterday, I
mean the questions are coming a lot more.
00:55:35.958 --> 00:55:39.458
She's forgetting that she's
even asking me questions.
00:55:40.292 --> 00:55:41.750
That's only in the last week or two?
00:55:41.792 --> 00:55:43.208
It's only in the last week or two.
00:55:43.292 --> 00:55:45.458
Before that, I mean, she would,
00:55:45.542 --> 00:55:49.250
15 minutes or 20 minutes later,
she'd say, “Well, where are we going?”
00:55:49.500 --> 00:55:51.708
But now it's every five minutes.
00:55:51.792 --> 00:55:54.792
She's forgotten she's even
asked me five minutes.
00:55:56.042 --> 00:55:57.583
But that's the way it is.
00:55:57.625 --> 00:56:00.583
-Does that go in ebbs and flows or does it?
-I'm not sure.
00:56:00.667 --> 00:56:03.125
Maybe because she was
tired or something. It could be.
00:56:03.208 --> 00:56:05.500
I don't know. I don't know.
00:56:06.042 --> 00:56:08.875
Are you just noticing it
more, or it is just--
00:56:08.958 --> 00:56:10.000
It's very noticeable.
00:56:10.083 --> 00:56:13.250
Well, it is noticeable.
I've noticed it a lot more now.
00:56:14.958 --> 00:56:19.042
Even with people, she's seeing people
and asking me who they are, you know?
00:56:19.125 --> 00:56:19.958
Yeah.
00:56:21.583 --> 00:56:23.542
It's tough going, so it is.
00:56:23.583 --> 00:56:24.583
Yeah.
00:56:33.000 --> 00:56:34.333
[Matt] Oh, my God.
00:56:35.833 --> 00:56:38.250
It's amazing to see them
all together, so it is.
00:56:40.708 --> 00:56:42.042
[Helena] Look at him.
00:56:43.458 --> 00:56:45.583
[Peter] You have to stop
laughing at me as a child.
00:56:45.708 --> 00:56:49.042
Every time you see a picture of
me as a child, you start laughing.
00:56:55.917 --> 00:56:57.833
-I think this one here…
-Which?
00:56:58.000 --> 00:57:00.250
Yeah. Yeah, it is.
00:57:06.125 --> 00:57:07.917
So do you like them?
00:57:07.958 --> 00:57:09.250
I do.
00:57:14.458 --> 00:57:15.833
Is that you?
00:57:15.958 --> 00:57:17.083
-Is that me?
-Yeah.
00:57:17.167 --> 00:57:19.125
-It's Billy and me, yeah.
-Billy.
00:57:19.833 --> 00:57:23.000
-I'm the little one.
-[Helena laughs]
00:57:58.625 --> 00:58:00.333
Thanks all for coming.
00:58:00.458 --> 00:58:06.167
This has been a project about
memory, and it's about our own memories
00:58:06.250 --> 00:58:09.083
and the memories that
we have through our lives.
00:58:09.125 --> 00:58:13.292
Our families, our children,
our parents, they're fragile things,
00:58:13.375 --> 00:58:16.917
wonderfully fragile in some ways,
and terrifyingly fragile.
00:58:17.125 --> 00:58:20.625
But one of the things that I've discovered
about this project and about
00:58:20.667 --> 00:58:24.542
living through this is
no matter what happens with somebody
00:58:24.583 --> 00:58:28.042
forgetting something,
people remember them in different ways.
00:58:28.083 --> 00:58:32.042
People, by talking about them and
sharing these memories, they live on.
00:58:32.125 --> 00:58:34.208
It's not about worrying
about forgetting things.
00:58:34.292 --> 00:58:36.667
It's not about, “will it last?”
00:58:36.708 --> 00:58:40.708
Actually, it's about sharing those memories in
the moment and living through it.
00:59:46.917 --> 00:59:48.917
-Enjoy your evening?
-Hmm?
00:59:49.000 --> 00:59:50.167
Did you enjoy your evening?
00:59:50.208 --> 00:59:51.958
-I did.
-Good.
00:59:53.875 --> 00:59:56.042
It's all about you in these photos.
01:00:06.583 --> 01:00:08.625
[Helena] Peter's very kind.
01:00:11.917 --> 01:00:13.125
He is.
01:00:14.208 --> 01:00:16.125
He's always kind.
01:00:22.292 --> 01:00:24.417
We never fought.
01:00:27.625 --> 01:00:29.833
And he definitely was creative.
01:00:34.667 --> 01:00:38.125
I saw what he could do.
01:00:40.667 --> 01:00:44.333
It was lovely that he was doing it.
01:00:48.875 --> 01:00:50.208
Pride.
01:00:51.000 --> 01:00:52.375
It's important.
01:00:54.417 --> 01:00:57.333
I'm very, very lucky.
01:03:08.208 --> 01:03:11.958
[Peter] I think it's such a visceral and
01:03:12.083 --> 01:03:17.750
contradictory thing to put so much emotion
into an image that is so personal,
01:03:18.292 --> 01:03:23.083
but to want people to destroy it
or to want the rain to wash it away.
01:03:26.792 --> 01:03:28.708
But I'm relishing it being destroyed.
01:03:39.542 --> 01:03:43.958
As much as this seems depressing and sad,
01:03:44.125 --> 01:03:47.750
which there's no avoiding it, it is.
01:03:53.417 --> 01:03:58.750
By creating 15 blackboards
and putting them all out onto the street,
01:03:58.917 --> 01:04:03.250
in locations that are relevant
to her or relevant to that image,
01:04:03.750 --> 01:04:08.667
I'm highlighting the joy of all those
memories and the significance of them.
01:04:23.208 --> 01:04:30.250
Chalk on blackboards feels like a very
real metaphor for what Alzheimer's is.
01:04:32.083 --> 01:04:36.208
And hopefully, that connects
with people and it can--
01:04:36.375 --> 01:04:40.542
It provokes a thought about
how fragile our memories are.
01:05:24.542 --> 01:05:26.125
Just hold that for a second.
01:05:28.042 --> 01:05:31.750
-This is the duster for the blackboard.
-Oh.
01:05:31.958 --> 01:05:34.375
To rub it off, and there's the chalk.
01:05:35.292 --> 01:05:37.625
-I didn't say to rub that off, now.
-Oh!
01:05:39.667 --> 01:05:42.542
Here, hold on to that box as well.
01:05:46.750 --> 01:05:48.542
Do you remember living here?
01:05:50.500 --> 01:05:51.667
No.
01:05:52.208 --> 01:05:54.375
-How could I?
-Hmm?
01:05:54.500 --> 01:05:56.000
How could I?
01:05:56.333 --> 01:05:58.333
This is where you grew up, isn't it?
01:06:00.792 --> 01:06:03.000
So do you remember who this is?
01:06:03.333 --> 01:06:05.208
-It's not Mammy.
-What?
01:06:05.333 --> 01:06:07.083
-It's not Mammy.
-It is your mum.
01:06:07.208 --> 01:06:10.208
-It's not.
-Well, that's you.
01:06:12.125 --> 01:06:13.500
That's your mum.
01:06:14.958 --> 01:06:16.292
It is your mum.
01:06:16.542 --> 01:06:18.167
Who else would it be?
01:06:21.792 --> 01:06:23.833
Why don't you think it's her?
01:06:24.208 --> 01:06:27.250
-I wouldn't recognise her.
-Well, you were only a baby.
01:06:27.417 --> 01:06:29.208
She was younger at that stage.
01:06:31.500 --> 01:06:33.500
This is the original photo,
and that's the drawing.
01:06:38.708 --> 01:06:40.750
So we're going to put
it up now on the wall.
01:06:42.250 --> 01:06:43.750
-Are you?
-Yeah.
01:06:44.167 --> 01:06:45.708
Do you want to give me a hand?
01:06:49.542 --> 01:06:50.708
Come on.
01:06:51.458 --> 01:06:52.917
Lift it up a bit more.
01:06:54.250 --> 01:06:55.458
There we go.
01:06:56.125 --> 01:06:57.417
I'll keep you.
01:07:00.708 --> 01:07:01.958
Perfect.
01:07:02.042 --> 01:07:03.250
All right.
01:07:03.500 --> 01:07:04.875
You come around this side.
01:07:05.792 --> 01:07:07.042
All good?
01:07:08.208 --> 01:07:10.958
You're earning your keep today.
01:07:14.375 --> 01:07:15.708
There we go.
01:07:16.000 --> 01:07:17.042
Excellent.
01:07:17.125 --> 01:07:18.375
Well done.
01:07:18.458 --> 01:07:20.583
-Ready to go?
-Yes.
01:07:21.958 --> 01:07:26.542
We're just going to leave it here to see
if anyone will rub it out or draw on it.
01:07:26.708 --> 01:07:28.708
So I'm going to leave the duster here.
01:07:34.208 --> 01:07:35.708
And some chalk.
01:07:36.000 --> 01:07:37.583
Do you want to put some chalk on it?
01:07:40.042 --> 01:07:41.792
Just leave some chalk down there.
01:08:14.958 --> 01:08:18.583
[Helena] My mother was from…
01:08:22.708 --> 01:08:25.917
My mother was from Cavan.
01:08:33.833 --> 01:08:35.750
Everybody loved her.
01:08:38.083 --> 01:08:40.542
Everybody, even up to now.
01:08:42.542 --> 01:08:47.250
She's the most kind person that you can meet.
01:08:51.000 --> 01:08:53.125
There were very good days.
01:08:57.708 --> 01:08:59.708
Very happy days.
01:09:54.667 --> 01:09:58.708
♪ Happy birthday, dear Helena ♪
01:09:59.125 --> 01:10:01.292
[Matt] It's one candle for every ten years.
01:10:04.833 --> 01:10:06.750
You're bigger than the mountain, Matt.
01:10:50.125 --> 01:10:53.708
[Bystander] She remembers faces, but
if you asked her her name, she wouldn't--
01:10:53.750 --> 01:10:56.125
-Okay.
-She can't express anything, really.
01:10:56.208 --> 01:10:59.375
She can't talk to you, which is
the hardest part of it, you know?
01:11:00.833 --> 01:11:07.292
[Voice] I felt a guilt and a frustration that
there was nothing I could do to stop it
01:11:07.458 --> 01:11:13.625
and to protect her from the wrecking
ball that Alzheimer's was in her life.
01:11:15.833 --> 01:11:21.125
We were angry and upset and frustrated,
01:11:21.292 --> 01:11:23.542
but we just had to accept it.
01:11:27.833 --> 01:11:29.792
I'm going to try draw a Pop Eye.
01:11:30.083 --> 01:11:33.917
My granddad had Alzheimer's and he
had a big massive Pop Eye tattoo,
01:11:34.000 --> 01:11:35.042
so I'm going to get that.
01:11:35.875 --> 01:11:39.333
You're always a child and they're always a
parent and you want to ask their advice
01:11:39.500 --> 01:11:45.125
and take their wisdom and take their
insight and I miss the conversations…
01:11:49.500 --> 01:11:53.375
What we went through together
enriched us as a couple.
01:11:53.500 --> 01:11:56.417
It was done out of pure
love and nothing else.
01:12:01.042 --> 01:12:04.667
I found, at the end of everything,
01:12:04.792 --> 01:12:10.583
I found great comfort to know
that I had done the very best I could.
01:12:10.625 --> 01:12:15.125
When you love someone that much,
you will push through anything.
01:12:15.167 --> 01:12:18.250
And he did so much for
me throughout our life.
01:12:18.333 --> 01:12:21.000
I loved her. I adored her.
01:12:21.208 --> 01:12:22.792
[Bystander] How do you feel?
01:12:28.083 --> 01:12:29.583
Emotional?
01:12:44.833 --> 01:12:47.417
[Peter] There's always been a way
of remembering things.
01:12:49.833 --> 01:12:52.208
Before video existed, it was photography.
01:12:53.458 --> 01:12:56.583
Before photographs exist,
it was oral history.
01:12:57.625 --> 01:13:01.666
And the more that you talk about people,
the more that you have these conversations,
01:13:02.041 --> 01:13:04.500
the more that person survives.
01:13:06.083 --> 01:13:09.166
It lives on in her siblings.
01:13:09.375 --> 01:13:12.000
It lives on in my dad and my brother.
01:13:12.250 --> 01:13:14.625
They're collective memories.
01:13:15.791 --> 01:13:19.666
So no matter how much she can
destroy them, they can’t be destroyed.
01:13:40.666 --> 01:13:42.666
[Matt] Now, nearly there.
01:13:43.791 --> 01:13:47.041
One across. “Deep affection.” Four letters.
01:13:49.666 --> 01:13:52.166
You have it for me. What is it?
01:13:54.083 --> 01:13:57.125
-Starts with L.
-[Helena laughs]
01:13:58.500 --> 01:14:02.708
Well, what affection do you have for me?
01:14:02.875 --> 01:14:04.208
What do you call it?
01:14:04.583 --> 01:14:06.333
-Love.
-Yep.
01:14:09.208 --> 01:14:12.958
Now, we were on the
right track, weren't we?
/