RARE follows an extraordinary mother in a race against time to find a…
Sun Kissed
- Description
- Reviews
- Citation
- Cataloging
- Transcript
For fifteen years Dorey and Yolanda Nez thought they were the only family on the Navajo Reservation who had children with an extremely rare genetic disorder that only shows up at a rate of one in a million in the general population. Behind the closed curtains of their trailer, parked in the stark desert of New Mexico, they care for their 16-year-old daughter Leanndra. Just like her brother who passed away at age 11, Leanndra was born with Xeroderma Pigmentosum (XP), a rare genetic disorder that makes any exposure to sunlight fatal.
Filmed over three years, with unprecedented access to the Navajo community, Sun Kissed follows Dorey and Yolanda as they bravely confront long-held tribal taboos and question the rebellious choices of their youth. Ultimately their journey leads them to the shocking truth: Their children and other Navajo children are still paying the price for the American conquest of the tribe in the 1860s, a brutal campaign culminating in an almost-forgotten chapter in American history -- the Navajo 'Long Walk' of 1864. Despite its importance as the defining moment in modern Navajo history and the beginning of their assimilation into American society, discussing the tragedy of the Long Walk remains a taboo topic within the Navajo community.
What Dorey and Yolanda find challenges the core of their identity and everything they believe in, and exposes a fresh perspective on the complex, cross-cultural identity of modern day Navajos. Focusing on the continuing implications of American colonialism and the genetic imprints it has left on this community, Sun Kissed presents a rare and realistic window into the issues confronting Native Americans today.
'A powerful and emotional story...This documentary will pull at the heart strings of all who watch it and is a great resource for courses in history, culture, and health for it links together Navajo traditional ways and understanding of illness with their history of removal, assimilation and acculturation. For those working in the field of Native health this is a must see documentary for it shows how beliefs affect how and from whom a person will seek care, how self-care is managed, and how health choices are made. As well, Sun Kissed demonstrates the importance of understanding the way social, structural, psychological, historical, and cultural factors affect physical health and how being sensitive to these factors can make an important difference in health outcomes.' Dr. Irene S. Vernon, Professor and Chair of Ethnic Studies, Colorado State University, Author, Killing Us Quietly: Native Americans and HIV/AIDS
'Sun Kissed is a rare filmmaking accomplishment, a sensitive personal story about the bonds of parents and children, as well as an enormously important historical and scientific detective account...This heart-rending story involves one family with two 'XP' children, and discovers this genocidal curse through their eyes. Sun Kissed is an amazing work that will touch your soul.' Bruce Johansen, Professor of Communications and Native American Studies, University of Nebraska, Author, Enduring Legacies: Native American Treaties and Contemporary Controversies
'The amount of traditional cultural knowledge portrayed is done in a respectful fashion and will educate the audience about Navajo world views and beliefs. Sun Kissed shares what a Navajo family might experience in trying to understand disease from both a Western biomedical science view and also from a Navajo traditional knowledge perspective. It sheds light on some of the challenges around this for both the families and for their supportive community, i.e. clinicians, relatives, and traditional healers.' Clarence Hogue, Jr., Research/Project Coordinator, Community Engagement Core Team, NM CARES Health Disparities Center, University of New Mexico Health Sciences Center
'Sun Kissed is a quiet, insistent look at some of the lasting effects of the Long Walk. It examines both the unknown and the unknowable along with the well known and the ignored. This is a film that should be examined along the wide arc of Native issues in contemporary America.' Theodore Van Alst, Assistant Dean of Yale College, Director of the Native American Cultural Center, Yale University
'Sun Kissed is commendable for the hard poetry of Navajo life and land it conveys. The film portrays the Navajo people with the dignity, compassion, and complexity they deserve. The connection it makes between the contemporary disease of XP and the genocidal Long Walk of 1864 needs to be understood by every American, if we hope to come to terms with the violent history of the U.S., past and present.' Eric Cheyfitz, Professor of American Indian and Indigenous Studies, Cornell University
'This is not 'just' a Native story. This is a human story. One's heart cannot help but be wrenched by it. This is a powerful film.' Jace Weaver, Director, Institute of Native American Studies, The University of Georgia, Author, That the People Might Live: Native American Literature and Native American Community
'The pain of conquest, extermination, cultural loss, and forced settlement on the reservation is enough for any society to endure. The genetic consequences, unintended as they are, are an additional cruelty that has and will continue to cost many parents their children and the entire tribe a valuable part of its future...Level/Use: Suitable for high school classes and college courses in cultural anthropology, medical anthropology, anthropology of colonialism, anthropology of threatened peoples, and Native American studies, as well as for general audiences.' Jack David Eller, Community College of Denver, Anthropology Review Database
'The inclusion of historical, cultural, and scientific information provides the viewer with the context necessary to frame the issue in a broader perspective. Further, the candid and provocative exploration into the Navajo's people struggle to both maintain their cultural traditions and values and identify with the 21st century culture in which they find themselves provides the viewer with a greater sense of the struggles undertaken by all cultures that are either forced or voluntarily assimilate into a secondary culture. The film is a useful resource for courses in genetics, Native American studies, social justice, anthropology, and sociology.' Rodney Birch, George Fox University, Educational Media Reviews Online
'Heart-rendering...Poignant and profound, Sun Kissed is a vivid portrayal of not only a family's trials and tribulations, but also the cultural cross-currents that engulf modern-day Navajos. Highly Recommended.' The Midwest Book Review
'This sensitive, heartbreaking portrayal of one family's struggle with a devastating medical mystery is recommended.' M. Puffer-Rothenburg, Video Librarian
'Sun Kissed is a film that gets to the very heart of indigenous concerns and is one of the finest I have seen about native peoples...Besides dealing with the problems of looking after children with XP, the film is a sensitive and very aware treatment of the general problems facing indigenous peoples...Sun Kissed is difficult material but essential...Bullfrog films are ideal for classroom use...They do outstanding work and would help progressive-minded teachers in college or high school get the message across about global warming, food safety, and indigenous peoples to their students.' Louis Proyect, Counterpunch
'A powerful documentary in the social and personal health field.' Daniel Gibson, Native Peoples Magazine
Citation
Main credits
Stark, Maya (Producer)
Stark, Maya (Director)
Stark, Maya (Cinematographer)
Lavy, Adi (Producer)
Lavy, Adi (Director)
Glatzer, Jocelyn (Producer)
Other credits
Editor, Ron Goldman; cinematographers, Avi Kastoriano, Vincent Venturella, Maya Stark; composers, Karni Postel & Tom Darom; translators, Aretta Begay, Wesley K. Thomas.
Distributor subjects
American Studies; Anthropology; Childbirth/Parenting; Disabilities; Genetics; Geography; Health; History; Human Rights; Native Americans; Race and Racism; Social Justice; Sociology; Western USKeywords
genetic disorder, ; Navajo children, Navajo Nation, Navajo Reservation, Xeroderma Pigmentosum, XP, fatal exposure to sunlight, tribal taboos, Navajo Long Walk, American colonialism, genetic imprints, medicine, traditional healing, illness, disease, Native Americans, New Mexico, tribal medicine men, Jon Aase, Harry Myers, Robert Erickson, Navajo culture, Navajo identity, concentration camp, genetic bottleneck,; "Sun Kissed"; Bullfrog Films,doc; history
00:00:11.716 --> 00:00:14.196
[DOGS BARKING]
00:00:19.652 --> 00:00:22.132
[HORSES WHINNYING]
00:00:26.596 --> 00:00:29.076
[BIRDS CHIRPING]
00:00:35.028 --> 00:00:37.508
[WIND BLOWING]
00:01:03.796 --> 00:01:05.780
[GUN COCKS]
00:01:12.180 --> 00:01:14.565
[GUN SHOOTS]
00:01:17.430 --> 00:01:21.040
Sitting right there.
00:01:21.040 --> 00:01:22.034
[GUN SHOOTS]
00:01:22.034 --> 00:01:24.022
[LAUGHS]
00:01:27.501 --> 00:01:29.489
[GUN COCKS]
00:01:32.480 --> 00:01:34.980
Doesn't know where the damn
bullets are coming from.
00:01:37.740 --> 00:01:39.130
[GUN SHOOTS]
00:01:39.130 --> 00:01:40.890
Damn it!
00:01:40.890 --> 00:01:43.350
You can put, no
animals were harmed.
00:01:43.350 --> 00:01:49.424
[CHUCKLES] The Indian
couldn't shoot straight.
00:01:49.424 --> 00:01:51.336
[DOGS BARKING]
00:01:57.560 --> 00:01:58.380
Oh, well.
00:01:58.380 --> 00:01:59.610
No dinner tonight.
00:02:03.760 --> 00:02:06.125
[MUSIC PLAYING]
00:02:53.366 --> 00:02:54.362
[BLOWS]
00:02:54.362 --> 00:02:55.358
There you go.
00:03:01.334 --> 00:03:04.322
[NON-ENGLISH SPEECH]
00:03:42.816 --> 00:03:44.784
[CAN OPENER WHIRRING]
00:03:47.244 --> 00:03:49.704
[FOOD SIZZLING]
00:03:54.624 --> 00:03:57.130
[SPOON STIRRING]
00:04:11.180 --> 00:04:13.660
[TV ON IN BACKGROUND]
00:04:13.660 --> 00:04:14.652
Hi, Dorey.
00:04:17.720 --> 00:04:19.440
I got you some flowers.
00:04:19.440 --> 00:04:20.350
I don't want flowers.
00:04:20.350 --> 00:04:21.016
I want the milk.
00:04:21.016 --> 00:04:24.090
Get the flowers, baby!
00:04:24.090 --> 00:04:24.944
And what is this?
00:04:24.944 --> 00:04:25.610
Those are roses.
00:04:28.322 --> 00:04:30.130
Cool.
00:04:30.130 --> 00:04:32.120
What's flowers for?
00:04:32.120 --> 00:04:34.000
Just brightening up the home.
00:04:34.000 --> 00:04:36.105
You can't eat flowers.
00:04:36.105 --> 00:04:38.230
[LAUGHING]
00:04:38.230 --> 00:04:40.966
he
00:04:40.966 --> 00:04:42.862
OK, sweetie, come on.
00:04:49.550 --> 00:04:50.786
OK, sweetie, OK.
00:04:54.526 --> 00:04:55.240
[GIRL WHIMPERS]
00:04:55.240 --> 00:04:55.740
[INAUDIBLE]
00:04:59.660 --> 00:05:02.110
[MACHINE WHIRRING]
00:05:02.110 --> 00:05:07.280
When Leandra was born, we had
a picnic up in a mountain area.
00:05:07.280 --> 00:05:08.450
And she got burned.
00:05:08.450 --> 00:05:11.580
And her face was
swelled up really bad
00:05:11.580 --> 00:05:15.000
where it closed her eyes shut.
00:05:15.000 --> 00:05:17.090
We kept taking her to
doctors, but no one
00:05:17.090 --> 00:05:21.800
knew exactly what was going
on, until one dermatologist
00:05:21.800 --> 00:05:26.870
confirmed the diagnosis of XP.
00:05:26.870 --> 00:05:28.445
[MACHINE WHIRRING]
00:05:52.740 --> 00:05:56.140
When I had Leandra, we
were told that there
00:05:56.140 --> 00:06:01.806
was a high probability that we
would have another XP child.
00:06:01.806 --> 00:06:03.288
And we did.
00:06:10.204 --> 00:06:13.168
Because it was such
a rare disease,
00:06:13.168 --> 00:06:14.830
we had to learn
a lot on our own.
00:06:17.710 --> 00:06:21.070
We knew we had to avoid
direct sunlight pretty much
00:06:21.070 --> 00:06:25.850
their entire lives, if possible.
00:06:25.850 --> 00:06:27.570
But we didn't know
what to expect
00:06:27.570 --> 00:06:30.760
from their neurological
regression.
00:06:30.760 --> 00:06:32.760
[MUSIC PLAYING]
00:06:33.760 --> 00:06:38.188
Darnell was regressing
faster than Leandra.
00:06:38.188 --> 00:06:39.735
And he lived to be 11.
00:06:44.492 --> 00:06:46.980
Funny boy, him and his eyes.
00:06:46.980 --> 00:06:47.480
Eyeballs.
00:06:50.468 --> 00:06:52.460
[MUSIC PLAYING]
00:07:02.918 --> 00:07:03.914
Mm.
00:07:03.914 --> 00:07:05.406
What?
00:07:05.406 --> 00:07:05.906
Yup.
00:07:08.894 --> 00:07:10.110
[KISSES] I love you.
00:07:14.940 --> 00:07:17.355
You OK now?
00:07:17.355 --> 00:07:18.820
Mm?
00:07:18.820 --> 00:07:24.300
I always believed the kids
were sent to us for a reason.
00:07:24.300 --> 00:07:27.100
They were brought to us
to teach us something,
00:07:27.100 --> 00:07:29.660
and that's for us
to figure out why
00:07:29.660 --> 00:07:32.362
we were given two
kids like this,
00:07:32.362 --> 00:07:36.210
two kids with a rare
disorder, two kids with XP.
00:07:41.816 --> 00:07:43.760
[WIND BLOWING]
00:07:47.670 --> 00:07:52.050
Navajo tradition, if you come
up with a disability child,
00:07:52.050 --> 00:07:57.360
you done something in the past
that created your disability.
00:07:57.360 --> 00:08:00.570
When we took Leandra to the
traditional medicine man,
00:08:00.570 --> 00:08:02.530
he brought back with
a diagnosis saying
00:08:02.530 --> 00:08:06.250
that it was part my fault
for the way my kids are.
00:08:06.250 --> 00:08:09.430
Because I played
with nature in ways
00:08:09.430 --> 00:08:11.452
that I should not
have played with it,
00:08:11.452 --> 00:08:16.742
like burning ants with
magnifying glasses.
00:08:16.742 --> 00:08:19.580
And that didn't work, so
I burned them with gas.
00:08:19.580 --> 00:08:22.500
[CHUCKLES] And I dug
them up, and tried
00:08:22.500 --> 00:08:23.590
to kill them that way.
00:08:23.590 --> 00:08:26.980
But unfortunately,
our traditional ways
00:08:26.980 --> 00:08:28.730
says not to do that.
00:08:28.730 --> 00:08:32.160
You're supposed to leave
things alone in that way.
00:08:32.160 --> 00:08:33.589
It's just what
kids do, you know?
00:08:33.589 --> 00:08:37.450
And curiosity, and nobody
was there to tell me no, no,
00:08:37.450 --> 00:08:42.112
no. [CHUCKLES] So I just
figured do it, you know?
00:08:42.112 --> 00:08:42.612
Ah.
00:08:49.030 --> 00:08:50.370
Now that's an ant mound.
00:08:55.200 --> 00:08:56.660
Yeah, it is.
00:08:56.660 --> 00:08:57.410
These are red.
00:09:03.622 --> 00:09:04.122
Ah.
00:09:22.400 --> 00:09:24.376
[BREATHING HEAVILY]
00:09:28.370 --> 00:09:31.190
Red versus gold.
00:09:31.190 --> 00:09:33.608
[MUSIC PLAYING]
00:09:41.400 --> 00:09:44.115
I'm doing it again.
00:09:44.115 --> 00:09:46.590
I'm creating war.
00:09:46.590 --> 00:09:48.570
[MUSIC PLAYING]
00:10:02.430 --> 00:10:04.905
[WIND BLOWING]
00:10:08.865 --> 00:10:10.350
Hey, you, [INAUDIBLE].
00:10:13.320 --> 00:10:15.250
[LEANDRA MOANS]
00:10:15.250 --> 00:10:18.010
We have to get you up,
sweetie, because we
00:10:18.010 --> 00:10:21.198
got to go see that doctor.
00:10:21.198 --> 00:10:21.698
[INAUDIBLE]
00:10:26.180 --> 00:10:27.180
[LEANDRA MOANS]
00:10:27.180 --> 00:10:28.950
I know.
00:10:28.950 --> 00:10:33.385
Okie took my baby
girl ready to go.
00:10:33.385 --> 00:10:38.170
Ah, whee, sorry, baby.
00:10:38.170 --> 00:10:40.170
What has to be done
needs to be done.
00:10:40.170 --> 00:10:42.170
[DOOR CREAKS]
00:10:54.170 --> 00:10:56.670
[MUSIC PLAYING]
00:11:14.670 --> 00:11:17.670
Since Darnell passed
away two years ago,
00:11:17.670 --> 00:11:22.170
Leandra has regressed along
She's not able to move.
00:11:22.170 --> 00:11:25.170
She's not able to eat.
00:11:25.170 --> 00:11:27.630
So we decided to
make an appointment
00:11:27.630 --> 00:11:32.123
with her neurologist
in Albuquerque.
00:11:32.123 --> 00:11:34.568
[MUSIC PLAYING]
00:11:38.969 --> 00:11:42.881
Leandra, big hippo.
00:11:42.881 --> 00:11:45.326
[SIGHS]
00:11:49.950 --> 00:11:50.450
Andra.
00:11:51.530 --> 00:11:54.230
[LEANDRA WHINES]
00:11:54.230 --> 00:11:55.800
I know, we hear her too.
00:11:55.800 --> 00:11:58.610
Starting her motor.
00:11:58.610 --> 00:12:00.820
[CHUCKLES]
00:12:01.840 --> 00:12:03.208
Hi, Leandra.
00:12:03.208 --> 00:12:04.880
Hi.
00:12:04.880 --> 00:12:08.125
Are you going to come
to the party here?
00:12:08.125 --> 00:12:09.580
[GIRL
00:12:09.580 --> 00:12:11.920
My goodness, girl.
00:12:11.920 --> 00:12:12.976
That was a good nap.
00:12:16.510 --> 00:12:19.740
I guess from the last
scan that she did,
00:12:19.740 --> 00:12:23.380
I want to know what
happens as she grows.
00:12:23.380 --> 00:12:24.930
Right.
00:12:24.930 --> 00:12:26.843
Is she signing at all anymore?
00:12:26.843 --> 00:12:27.630
Uh-uh.
00:12:27.630 --> 00:12:29.114
Lost that?
00:12:29.114 --> 00:12:29.930
OK.
00:12:29.930 --> 00:12:32.030
This part of the
brain underneath,
00:12:32.030 --> 00:12:35.250
that's a really important
part of the brain for balance
00:12:35.250 --> 00:12:36.860
and coordination.
00:12:36.860 --> 00:12:42.280
That seems to be the earliest
hit region in this disease.
00:12:42.280 --> 00:12:47.010
And what we see with Leandra
is that, over time, there's
00:12:47.010 --> 00:12:50.620
a lot more space around
that part of the brain.
00:12:50.620 --> 00:12:52.640
Her skull hasn't
gotten any bigger.
00:12:52.640 --> 00:12:53.270
It's the same.
00:12:53.270 --> 00:12:56.934
So it means that the brain
is actually shrinking there.
00:12:56.934 --> 00:13:01.150
Definitely the cognition
has been involved.
00:13:01.150 --> 00:13:03.950
I'm guessing that
she's still thinking.
00:13:03.950 --> 00:13:07.600
She's probably having good
thoughts and bad thoughts and--
00:13:07.600 --> 00:13:12.150
Would she get depressed,
Yeah We miss our son.
00:13:12.150 --> 00:13:14.400
Would she miss her brother?
00:13:14.400 --> 00:13:16.220
I have no way to tell.
00:13:16.220 --> 00:13:20.520
I would guess so, at least at
some level deep in her soul.
00:13:20.520 --> 00:13:22.256
Maybe just even
because you guys are.
00:13:27.712 --> 00:13:30.192
[MUSIC PLAYING]
00:13:50.528 --> 00:13:53.008
[INSECTS CHIRPING]
00:13:53.008 --> 00:13:54.992
[DOGS BARKING]
00:14:09.872 --> 00:14:12.352
[NON-ENGLISH SPEECH]
00:14:20.710 --> 00:14:54.310
back
00:14:54.310 --> 00:14:56.794
[WIND BLOWING]
00:15:13.162 --> 00:15:18.618
[BIRDS CAWING]
00:15:22.130 --> 00:15:23.850
Just put it right there.
00:15:23.850 --> 00:15:27.350
And then when we make
the bread, then we'll
00:15:27.350 --> 00:15:29.702
stick it under there so
the flame could come up.
00:15:29.702 --> 00:15:31.554
[FIRE CRACKLING]
00:15:32.999 --> 00:15:34.790
Lori's looking forward
to fried bread, mom.
00:15:34.790 --> 00:15:35.720
Oh, really?
00:15:35.720 --> 00:15:36.443
Yeah.
00:15:36.443 --> 00:15:37.309
Ow.
00:15:37.309 --> 00:15:38.610
It's hot, huh?
00:15:38.610 --> 00:15:39.885
Yeah, phew.
00:15:45.260 --> 00:15:47.570
My parents are
traditional Navajos.
00:15:47.570 --> 00:15:50.730
They live by the Navajo
traditional ways.
00:15:50.730 --> 00:15:55.400
And in our tradition, it's taboo
to talk about any diseases.
00:15:55.400 --> 00:15:58.210
Because if you talk
about those things,
00:15:58.210 --> 00:16:00.890
you're just inviting them
to come into your home
00:16:00.890 --> 00:16:02.616
and come to you.
00:16:02.616 --> 00:16:06.480
And so Dorey and I would
rather not talk about our kids
00:16:06.480 --> 00:16:09.230
with our families.
00:16:09.230 --> 00:16:11.990
We just kind of
keep it to ourselves
00:16:11.990 --> 00:16:14.376
and repress a lot of that.
00:16:14.376 --> 00:16:16.841
[MUSIC PLAYING]
00:16:31.138 --> 00:16:34.096
A lot of time, my venting
is through my work.
00:16:37.550 --> 00:16:40.930
I'm an advocate with the Native
American Disability Law Center.
00:16:43.870 --> 00:16:47.790
I families and kids
with disabilities
00:16:47.790 --> 00:16:50.730
in the areas of special
education and civil right
00:16:50.730 --> 00:16:52.200
cases.
00:16:52.200 --> 00:16:54.005
I also go out in the
different communities
00:16:54.005 --> 00:16:57.640
to do different presentations,
teaching the parents
00:16:57.640 --> 00:17:01.000
about their rights
under the law.
00:17:01.000 --> 00:17:04.330
usually I tell the
story about my kids,
00:17:04.330 --> 00:17:07.772
and how I became who I am today.
00:17:07.772 --> 00:17:10.227
[KIDS PLAYING]
00:17:14.646 --> 00:17:17.101
[BIRDS CHIRPING]
00:17:17.101 --> 00:17:19.065
[TV IN BACKGROUND]
00:17:20.538 --> 00:17:27.258
Okie Baby gal.
00:17:27.258 --> 00:17:31.520
When my kids were born, that's
when we decided one of us
00:17:31.520 --> 00:17:32.830
had to stay home.
00:17:35.710 --> 00:17:38.750
16 years ago, that's
when I quit my job,
00:17:38.750 --> 00:17:42.440
and I decided to stay home
and try to take care of them
00:17:42.440 --> 00:17:45.880
the best way I knew how.
00:17:45.880 --> 00:17:48.360
[WATER RUNNING]
00:17:48.360 --> 00:17:52.620
Even my own relatives
freak out on me what I do.
00:17:52.620 --> 00:17:55.290
When they come here, they
just look at my daughter
00:17:55.290 --> 00:17:58.560
like, what in the world?
00:17:58.560 --> 00:18:00.720
She's hooked up to
feeding machines,
00:18:00.720 --> 00:18:02.000
and I'm suctioning her.
00:18:02.000 --> 00:18:05.280
And they're freaking out, like,
what gone Then they just leave.
00:18:05.280 --> 00:18:06.910
They never come back.
00:18:06.910 --> 00:18:09.264
There you me
00:18:09.264 --> 00:18:11.754
[MUSIC PLAYING]
00:18:12.750 --> 00:18:15.240
[FIRE CRACKLING]
00:18:18.726 --> 00:18:20.220
Leandra and Darnell.
00:18:33.700 --> 00:18:38.530
I think in our heart we
already know what the end is.
00:18:38.530 --> 00:18:41.810
But we just don't know when.
00:18:41.810 --> 00:18:44.335
You Have expiration date
underneath your feet,
00:18:44.335 --> 00:18:51.665
or something like that,
You just live on hope.
00:18:51.665 --> 00:18:58.595
[SCOFFS]
00:18:58.595 --> 00:19:00.575
[MUSIC PLAYING]
00:19:16.910 --> 00:19:17.900
[KISS]
00:19:17.900 --> 00:19:18.885
See you later.
00:19:18.885 --> 00:19:19.385
OK.
00:19:32.760 --> 00:19:36.080
Because XP is so rare,
we always thought
00:19:36.080 --> 00:19:39.840
we were the only Navajo
family on the reservation.
00:19:39.840 --> 00:19:42.701
All doctors were telling me
that it's a rare disease.
00:19:45.647 --> 00:19:48.312
Recently, at a conference,
all of the sudden,
00:19:48.312 --> 00:19:51.600
this one lady
approached me and said
00:19:51.600 --> 00:19:55.976
that, I think my friends
has kids like yours.
00:19:55.976 --> 00:19:58.252
I'm like, kids like mines?
00:19:58.252 --> 00:19:58.960
What do you mean?
00:19:58.960 --> 00:20:00.898
And shes like, well,
let me find out
00:20:00.898 --> 00:20:05.310
if she is willing
to talk to you.
00:20:05.310 --> 00:20:08.586
Go all To the end of
the hall and turn left.
00:20:14.042 --> 00:20:17.018
Hi, Yolanda, how are you doing?
00:20:17.018 --> 00:20:18.506
Good.
00:20:18.506 --> 00:20:19.498
Does she talk?
00:20:19.498 --> 00:20:22.474
No, she doesn't talk.
00:20:22.474 --> 00:20:24.458
Hi, Ladonya.
00:20:24.458 --> 00:20:26.938
How are you doing?
00:20:26.938 --> 00:20:28.640
You're watching TV?
00:20:28.640 --> 00:20:30.050
[GIGGLES] Hi.
00:20:35.230 --> 00:20:36.550
She looks like my daughter.
00:20:36.550 --> 00:20:37.530
Does she?
00:20:43.410 --> 00:20:44.390
[CRYING]
00:20:44.390 --> 00:20:45.370
It's so hard.
00:20:50.270 --> 00:20:52.682
Thank you.
00:20:52.682 --> 00:20:53.890
Do you want me to drink some?
00:20:53.890 --> 00:20:54.385
[LADONYA MOANS]
00:20:54.385 --> 00:20:54.885
Yeah?
00:21:02.800 --> 00:21:06.265
[LADONYA BABBLES]
00:21:06.265 --> 00:21:07.444
Yeah, it's candy.
00:21:07.444 --> 00:21:09.235
You said she looks just
like your daughter.
00:21:09.235 --> 00:21:17.155
Yeah, she looks just like
00:21:17.155 --> 00:21:19.630
[KIDS TALKING IN BACKGROUND]
00:21:26.003 --> 00:21:26.502
Hi.
00:21:30.365 --> 00:21:32.790
[LAUGHS]
00:21:32.790 --> 00:21:35.190
She's cute.
00:21:35.190 --> 00:21:38.604
[LADONYA CRIES]
00:21:38.604 --> 00:21:41.540
[WATER FLOWING]
00:21:41.540 --> 00:21:45.450
I found out about Lance's
when he was about a month old.
00:21:45.450 --> 00:21:48.260
He was jaundice, so they
put him under a blue light.
00:21:48.260 --> 00:21:50.360
And it burned him.
00:21:50.360 --> 00:21:52.890
And we didn't know
what happened.
00:21:52.890 --> 00:21:54.980
Nobody knew anything about it.
00:21:54.980 --> 00:22:00.060
Even the doctor that diagnosed,
he didn't know about it.
00:22:00.060 --> 00:22:04.460
It took him at least, I think,
three years before he finally
00:22:04.460 --> 00:22:07.160
gave me some information.
00:22:07.160 --> 00:22:10.390
But then, by that
time, we had her.
00:22:10.390 --> 00:22:13.320
And then I just--
after we had Ladonya
00:22:13.320 --> 00:22:15.800
and we found out
that she was normal,
00:22:15.800 --> 00:22:20.610
we waited five years
before we had her.
00:22:20.610 --> 00:22:22.890
And then this one
came as a surprise.
00:22:22.890 --> 00:22:26.890
[LAUGHS]
00:22:26.890 --> 00:22:29.420
In my family, we
have medicine men.
00:22:29.420 --> 00:22:36.050
And they would tell me stuff
like somewhere during the time
00:22:36.050 --> 00:22:42.910
I was young I had burned
those little red ants,
00:22:42.910 --> 00:22:46.650
and that was the reason
why my kids are like that.
00:22:46.650 --> 00:22:48.340
I don't know.
00:22:48.340 --> 00:22:50.860
I know my husband, he
wasn't raised in that.
00:22:50.860 --> 00:22:56.870
So I tried that, and
it didn't work so.
00:22:56.870 --> 00:22:58.710
You guys are Mormons?
00:22:58.710 --> 00:23:00.295
Are you guys Mormons or LDS?
00:23:00.295 --> 00:23:01.600
Yeah, LDS.
00:23:01.600 --> 00:23:03.880
Yeah.
00:23:03.880 --> 00:23:06.710
I grew up in that
religion all my life.
00:23:09.610 --> 00:23:13.990
And when I had the kids, it
was OK when I had the kids.
00:23:13.990 --> 00:23:15.700
But when Darnell
passed away, that's
00:23:15.700 --> 00:23:20.060
where I really
questioned my religion.
00:23:20.060 --> 00:23:22.730
I haven't gotten to that
point of acceptance yet.
00:23:26.090 --> 00:23:28.454
To me, I just go going
back to tests I guess.
00:23:31.060 --> 00:23:34.510
Heavenly Father's putting
us through this test
00:23:34.510 --> 00:23:37.890
while we're here
on Earth, and then
00:23:37.890 --> 00:23:40.350
putting our kids
through this test.
00:23:40.350 --> 00:23:45.850
And I used to get upset,
you know, well, why pick me?
00:23:45.850 --> 00:23:52.442
Why did he put, not only one,
but I have three kids that I
00:23:52.442 --> 00:23:55.290
got to plan three funerals for.
00:23:55.290 --> 00:23:59.785
I questioned him, like,
why me and why us?
00:24:24.535 --> 00:24:26.515
[MUSIC PLAYING]
00:24:28.990 --> 00:24:35.840
Tina told me that she heard
of other Navajo kids with XP,
00:24:35.840 --> 00:24:39.694
and that they may have
already passed away.
00:24:39.694 --> 00:24:40.678
OK, sweetie.
00:24:46.970 --> 00:24:49.810
I was really surprised
to hear that there were
00:24:49.810 --> 00:24:53.670
other kids on the reservation.
00:24:53.670 --> 00:24:56.020
How could that be?
00:24:56.020 --> 00:24:58.350
How could there be
other kids with XP?
00:25:01.817 --> 00:25:03.685
[INSECTS CHIRPING]
00:25:05.086 --> 00:25:06.490
[MUSIC PLAYING]
00:25:06.490 --> 00:25:09.000
I started asking a lot
of different people
00:25:09.000 --> 00:25:13.010
if they've seen other
XP kids on and I finally
00:25:13.010 --> 00:25:15.936
found other families with XP.
00:25:15.936 --> 00:25:17.881
[MUSIC PLAYING]
00:25:21.860 --> 00:25:25.084
Amanda was born 1988.
00:25:25.084 --> 00:25:30.680
And after I found out what XP
was, people kept telling me,
00:25:30.680 --> 00:25:35.974
you should have a blessing
in the Navajo way for her.
00:25:35.974 --> 00:25:39.090
And ask the sun for forgiveness.
00:25:39.090 --> 00:25:41.270
Maybe she'll be OK.
00:25:41.270 --> 00:25:44.276
But I never did.
00:25:44.276 --> 00:25:46.232
[CRYING]
00:25:46.232 --> 00:25:48.677
[MUSIC PLAYING]
00:25:57.479 --> 00:25:59.450
This is Landy.
00:25:59.450 --> 00:26:05.560
She was born August 20, 1986.
00:26:05.560 --> 00:26:09.410
I went to see my father,
who was a medicine man.
00:26:09.410 --> 00:26:11.650
He is the one that
told me, you probably
00:26:11.650 --> 00:26:15.580
burned one of those little
rodents, a mice or something.
00:26:15.580 --> 00:26:16.930
I see something in there.
00:26:16.930 --> 00:26:18.460
It's small.
00:26:18.460 --> 00:26:20.810
He says, you burned it.
00:26:20.810 --> 00:26:23.500
When you just take
nature for granted,
00:26:23.500 --> 00:26:27.540
any living organism out
there, it has a life.
00:26:27.540 --> 00:26:31.200
And when you go and you
corrupt that part of it,
00:26:31.200 --> 00:26:35.120
in retaliation, I think
that it comes back on you.
00:26:35.120 --> 00:26:38.868
And I believe that part of it.
00:26:38.868 --> 00:26:40.852
[THUNDER RUMBLING]
00:26:40.852 --> 00:26:42.836
[RAIN POURING]
00:26:42.836 --> 00:26:44.820
[WIND WHIPPING]
00:26:47.796 --> 00:26:52.756
[INAUDIBLE] OK, chicky wicky.
00:26:57.716 --> 00:26:59.204
[THUNDER RUMBLING]
00:26:59.204 --> 00:27:01.188
[TV IN BACKGROUND]
00:27:18.560 --> 00:27:21.290
I got a phone call
from a friend of mine.
00:27:21.290 --> 00:27:24.810
He is a coordinator for a
special education program.
00:27:24.810 --> 00:27:26.880
And he said, I think
we have another kid
00:27:26.880 --> 00:27:29.360
in McKinley County--
which is in the area we
00:27:29.360 --> 00:27:33.588
live in-- who may have XP.
00:27:33.588 --> 00:27:35.560
[KIDS PLAYING]
00:27:40.490 --> 00:27:42.955
[KNOCKING ON DOOR]
00:27:44.927 --> 00:27:47.490
So he's four years old now, huh?
00:27:47.490 --> 00:27:49.106
He's so calm.
00:27:49.106 --> 00:27:50.534
[BOY BABBLES]
00:27:50.534 --> 00:27:51.962
He's tired.
00:27:51.962 --> 00:27:52.920
Is he?
00:27:52.920 --> 00:27:54.110
But usually is he active?
00:27:54.110 --> 00:27:59.896
He's like running Aren't ya?
00:27:59.896 --> 00:28:01.324
[BOY BABBLES]
00:28:01.324 --> 00:28:02.280
[YOLANDA LAUGHS]
00:28:02.280 --> 00:28:05.090
after he was born, he was
about four months old,
00:28:05.090 --> 00:28:06.910
it was kind of chilly in here.
00:28:06.910 --> 00:28:08.080
So I open the curtains.
00:28:08.080 --> 00:28:10.640
So we were sitting in the sun.
00:28:10.640 --> 00:28:12.550
He started swelling
up the next day.
00:28:12.550 --> 00:28:14.000
That night, he started crying.
00:28:14.000 --> 00:28:17.480
And we didn't even know
what was all going on.
00:28:17.480 --> 00:28:21.090
Then they told us that
we were abusive to him
00:28:21.090 --> 00:28:22.830
because he was swelling.
00:28:22.830 --> 00:28:24.480
His face was swelling.
00:28:24.480 --> 00:28:26.690
And that wasn't right,
because we never
00:28:26.690 --> 00:28:29.590
hit Lane, or nothing like that.
00:28:29.590 --> 00:28:34.090
We've been accused of a lot of
things before he was diagnosed.
00:28:34.090 --> 00:28:36.860
Just recently, back
in July I think,
00:28:36.860 --> 00:28:38.760
my daughter diagnosed
him with XP.
00:28:44.254 --> 00:28:46.242
[MUSIC PLAYING]
00:28:48.230 --> 00:28:51.170
[FIRE CRACKLING]
00:28:51.170 --> 00:28:53.045
Mom, we go away.
00:28:53.045 --> 00:28:53.545
Whoops.
00:28:53.545 --> 00:28:54.970
[BOY YELLS]
00:28:54.970 --> 00:28:56.380
Here we go.
00:28:56.380 --> 00:28:56.880
Here.
00:28:56.880 --> 00:28:59.510
Here's your ride, Lane.
00:28:59.510 --> 00:29:01.920
[BOY CRIES]
00:29:08.668 --> 00:29:10.190
Grandma's got to cook it.
00:29:10.190 --> 00:29:10.690
Yay!
00:29:13.620 --> 00:29:16.530
Yolanda's the first
person that, whatever
00:29:16.530 --> 00:29:20.390
my son is going through,
her kids want through that.
00:29:20.390 --> 00:29:22.080
It's just the
first time that I'm
00:29:22.080 --> 00:29:29.612
talking to somebody about XP and
what to expect in the long run.
00:29:29.612 --> 00:29:31.320
It's just that you
don't want to hear it,
00:29:31.320 --> 00:29:33.750
but they're going to
tell you that he's not
00:29:33.750 --> 00:29:35.240
going to be around forever.
00:29:40.616 --> 00:29:42.170
So you got to take your day.
00:29:53.325 --> 00:29:55.520
(CRYING) So I'm going
to take it day by day.
00:30:02.345 --> 00:30:04.205
[MUSIC PLAYING]
00:30:30.400 --> 00:30:32.880
[SCOFFS]
00:30:37.840 --> 00:30:38.832
She's asleep.
00:30:41.840 --> 00:30:42.790
What you afraid of?
00:30:42.790 --> 00:30:43.786
Oh.
00:30:43.786 --> 00:30:45.278
She just woke up.
00:30:45.278 --> 00:30:45.778
[INAUDIBLE]
00:30:51.256 --> 00:30:53.746
[MUSIC PLAYING]
00:30:54.742 --> 00:30:55.738
Baby girl.
00:30:59.222 --> 00:30:59.722
Sweetie pie.
00:31:10.678 --> 00:31:12.670
[MUSIC PLAYING]
00:31:18.148 --> 00:31:20.638
[NON-ENGLISH SPEECH]
00:32:26.650 --> 00:32:27.857
Too late.
00:32:27.857 --> 00:32:29.350
[LAUGHS]
00:32:29.350 --> 00:32:30.090
Too late.
00:32:36.360 --> 00:32:38.352
[MUSIC PLAYING]
00:32:58.790 --> 00:33:01.800
I was told never to
marry your own clan,
00:33:01.800 --> 00:33:06.422
because that's considered taboo
in the Navajo way, you know?
00:33:09.250 --> 00:33:13.220
But we're more like
today's Indians.
00:33:13.220 --> 00:33:17.610
Love outweighed everything out.
00:33:17.610 --> 00:33:23.320
Romeo, Juliet, you
know, what can you do?
00:33:23.320 --> 00:33:27.720
We met 20 years ago at work.
00:33:27.720 --> 00:33:29.970
Well, I started flirting
with you a little, huh?
00:33:29.970 --> 00:33:30.570
I don't know.
00:33:30.570 --> 00:33:32.020
I don't know.
00:33:32.020 --> 00:33:34.096
[CHUCKLING]
00:33:34.096 --> 00:33:38.570
The next thing you know, we
are running around together.
00:33:38.570 --> 00:33:41.280
He would write poems to me.
00:33:41.280 --> 00:33:42.980
And so--
00:33:42.980 --> 00:33:43.860
She would ask.
00:33:43.860 --> 00:33:46.590
[CHUCKLES] Write me this.
00:33:46.590 --> 00:33:49.380
Write me that.
00:33:49.380 --> 00:33:54.510
And it was on anything, like
a piece of paper, a napkin.
00:33:54.510 --> 00:33:58.230
And then when we
met, we didn't really
00:33:58.230 --> 00:33:59.962
talk about the clan system, huh?
00:33:59.962 --> 00:34:01.200
Uh-uh.
00:34:01.200 --> 00:34:04.720
And until, actually, my
grandmother had asked us--
00:34:04.720 --> 00:34:09.390
Then it got serious then when
your parents got involved, so.
00:34:09.390 --> 00:34:11.060
Told me to go home.
00:34:11.060 --> 00:34:17.130
[CHUCKLES] We were just young,
naive, and in love [INAUDIBLE].
00:34:20.510 --> 00:34:21.740
So nothing mattered.
00:34:28.670 --> 00:34:31.628
[BIRDS CHIRPING]
00:34:31.628 --> 00:34:34.093
[MUSIC PLAYING]
00:34:43.479 --> 00:34:46.430
When they found out that
we were of the same clan,
00:34:46.430 --> 00:34:48.830
my grandmother and my
mother were against Dorey
00:34:48.830 --> 00:34:50.864
and I getting together.
00:34:50.864 --> 00:34:52.289
OK.
00:34:52.289 --> 00:34:55.439
I got upset with them and
told them that I love Dorey,
00:34:55.439 --> 00:34:59.230
so you guys better
learned how to accept it.
00:34:59.230 --> 00:35:02.406
And they eventually did.
00:35:02.406 --> 00:35:04.402
[DOG BARKING]
00:35:06.398 --> 00:35:08.893
Hi.
00:35:08.893 --> 00:35:11.388
Give me a hug.
00:35:11.388 --> 00:35:14.881
Hi, baby girl.
00:35:14.881 --> 00:35:17.376
Mother.
00:35:17.376 --> 00:35:20.370
Hello.
00:35:20.370 --> 00:35:22.865
Where's Margaret at?
00:35:22.865 --> 00:35:25.360
[KIDS YELLING]
00:35:27.855 --> 00:35:29.851
[DOG BARKING]
00:35:29.851 --> 00:35:32.345
Did you bring the
potato salad, Mother?
00:35:32.345 --> 00:35:32.845
Yeah.
00:35:35.839 --> 00:35:37.835
[KIDS WHINING]
00:35:37.835 --> 00:35:39.831
Ugh.
00:35:39.831 --> 00:35:42.326
[KIDS YELLING]
00:35:44.821 --> 00:35:45.819
OK, mom.
00:35:45.819 --> 00:35:47.815
We're ready to eat now.
00:35:47.815 --> 00:35:49.170
Who wants to say the prayer?
00:35:49.170 --> 00:35:49.670
Mom?
00:35:54.080 --> 00:35:55.060
Baby girl.
00:35:58.000 --> 00:35:59.500
[NON-ENGLISH SPEECH]
00:36:06.540 --> 00:36:39.370
Yeah
00:36:39.370 --> 00:36:39.870
Amen.
00:36:44.810 --> 00:36:45.798
OK. [INAUDIBLE]
00:36:51.730 --> 00:36:53.810
You have to learn your culture.
00:36:53.810 --> 00:36:55.576
You have to really learn it.
00:36:55.576 --> 00:36:59.356
But my dad says
it'll never happen.
00:36:59.356 --> 00:37:04.170
He says too much has
gone by, and people
00:37:04.170 --> 00:37:07.100
are forgetting their
culture, their language,
00:37:07.100 --> 00:37:09.240
and their clans.
00:37:09.240 --> 00:37:11.030
You have to know your culture.
00:37:11.030 --> 00:37:16.540
If you don't, you go
the Western world,
00:37:16.540 --> 00:37:18.370
and things will
not turn out right.
00:37:23.870 --> 00:37:26.370
[MUSIC PLAYING]
00:37:38.870 --> 00:37:40.854
[INSECTS CHIRPING]
00:37:45.290 --> 00:37:47.965
That should be enough, Larry.
00:37:47.965 --> 00:37:50.215
I don't think we're going
to take care of all of this.
00:37:58.024 --> 00:37:59.530
And hang some up.
00:37:59.530 --> 00:38:01.820
Yeah, that's the last--
00:38:14.530 --> 00:38:17.930
But what is your clan?
00:38:17.930 --> 00:38:22.300
My clan is [NON-ENGLISH].
00:38:25.430 --> 00:38:29.490
My clan is [NON-ENGLISH].
00:38:29.490 --> 00:38:31.900
And Dorey I have both the
same clans, [NON-ENGLISH].
00:38:35.560 --> 00:38:38.760
I always tell you, yeah,
don't marry your own clan.
00:38:38.760 --> 00:38:41.210
[LAUGHS]
00:38:41.210 --> 00:38:43.550
That's what we were told,
because Dorey and I were
00:38:43.550 --> 00:38:45.940
both the same clan.
00:38:45.940 --> 00:38:47.830
Don't marry your same clan.
00:38:47.830 --> 00:38:48.855
Mm-hmm.
00:38:48.855 --> 00:38:49.355
Yeah.
00:38:52.100 --> 00:38:56.390
That XP is because of that.
00:38:56.390 --> 00:39:00.489
Larry and I are
not the same clan.
00:39:00.489 --> 00:39:01.530
You're not the same clan?
00:39:01.530 --> 00:39:03.650
No.
00:39:03.650 --> 00:39:04.320
Oh, really?
00:39:08.230 --> 00:39:13.435
So that basically
says that's not true.
00:39:13.435 --> 00:39:15.410
It's not about clan system.
00:39:15.410 --> 00:39:18.796
It's not because Dorey
and I are related.
00:39:18.796 --> 00:39:21.261
[MUSIC PLAYING]
00:39:26.684 --> 00:39:29.149
[MACHINE BEEPING]
00:39:33.586 --> 00:39:35.065
[INAUDIBLE], little girl.
00:39:39.502 --> 00:39:41.967
[MUSIC PLAYING]
00:39:43.939 --> 00:39:46.210
I asked the other
families if they
00:39:46.210 --> 00:39:48.790
were married within
their same clan,
00:39:48.790 --> 00:39:55.310
and they all know Then
why is it happening to us?
00:39:55.310 --> 00:39:56.918
there has to be a reason why.
00:40:01.798 --> 00:40:06.110
I decided to contact Dr. Aase,
a geneticist from the University
00:40:06.110 --> 00:40:08.840
of New Mexico.
00:40:08.840 --> 00:40:10.470
I wanted to find
out why there are so
00:40:10.470 --> 00:40:14.450
many families on the
reservation with XP.
00:40:14.450 --> 00:40:17.450
This Leandra.
00:40:17.450 --> 00:40:18.637
Yup.
00:40:18.637 --> 00:40:20.451
Yeah, that's
Leandra right there.
00:40:20.451 --> 00:40:21.825
Leandra's got such
a great smile.
00:40:21.825 --> 00:40:22.919
I know.
00:40:22.919 --> 00:40:24.960
If you see pictures of
her, she's always smiling.
00:40:24.960 --> 00:40:27.440
Oh, that's wonderful.
00:40:27.440 --> 00:40:30.496
Darnell always had that
look, so I could never tell.
00:40:30.496 --> 00:40:31.450
I see.
00:40:31.450 --> 00:40:32.910
Yeah.
00:40:32.910 --> 00:40:38.780
When I came here in '74, one
of the first things I did
00:40:38.780 --> 00:40:41.330
was set up some clinics
around the [INAUDIBLE].
00:40:41.330 --> 00:40:47.590
And I went out to McKinley
County and saw a child with XP.
00:40:47.590 --> 00:40:52.410
I had never seen a child with
XP before, because it's so rare.
00:40:52.410 --> 00:40:55.050
And about two or three
years later, I went out
00:40:55.050 --> 00:40:57.050
and there was another family.
00:40:57.050 --> 00:41:01.250
And the second family was
with two boys affected.
00:41:01.250 --> 00:41:02.600
I think we had five families.
00:41:02.600 --> 00:41:04.820
We may have had six families.
00:41:04.820 --> 00:41:09.500
It was then that the little
flag started to wave in my head.
00:41:09.500 --> 00:41:13.210
XP seems to have a general
occurrence of about one
00:41:13.210 --> 00:41:15.950
in a million people.
00:41:15.950 --> 00:41:19.720
And in the Navajo population,
just based on the kids
00:41:19.720 --> 00:41:23.990
that I had seen back him in
the days that I was working,
00:41:23.990 --> 00:41:27.810
we would expected the incidence
to be about one in 30,000,
00:41:27.810 --> 00:41:34.810
or a little less, which is just
a remarkable increase in risk.
00:41:34.810 --> 00:41:37.530
I don't know much
about the Long Walk.
00:41:37.530 --> 00:41:40.180
But I know that that
has been brought up
00:41:40.180 --> 00:41:44.990
as a possible
influence, the XP cases.
00:41:44.990 --> 00:41:46.390
A long walk may explain it.
00:42:04.346 --> 00:42:06.791
[MUSIC PLAYING]
00:42:28.490 --> 00:42:30.790
I don't know much
about the Long Walk.
00:42:30.790 --> 00:42:33.740
I was never really
told stories about it.
00:42:33.740 --> 00:42:35.620
Did people share,
or your relatives,
00:42:35.620 --> 00:42:37.814
share anything with you?
00:42:37.814 --> 00:42:45.816
Mm, not much, just suffering,
and more suffering, and dying,
00:42:45.816 --> 00:42:46.804
and hunger.
00:42:46.804 --> 00:42:48.570
And that's about it.
00:42:48.570 --> 00:42:51.330
Not very much detail
about anything else.
00:42:51.330 --> 00:42:54.455
Well, could it possibly
come from the Long Walk,
00:42:54.455 --> 00:42:58.520
these diseases like XP, could
it come from the long walk
00:42:58.520 --> 00:42:59.970
possibly?
00:42:59.970 --> 00:43:03.570
I would be curious to find out.
00:43:03.570 --> 00:43:04.070
Hm.
00:43:08.910 --> 00:43:11.330
[MUSIC PLAYING]
00:43:16.670 --> 00:43:18.913
[NON-ENGLISH SPEECH]
00:43:51.181 --> 00:43:53.676
[MUSIC PLAYING]
00:44:01.070 --> 00:44:04.140
[SHEEP BAAING]
00:44:04.140 --> 00:44:06.080
[DOG BARKING]
00:44:15.295 --> 00:44:17.565
We think that Lean
and Dar's disease
00:44:17.565 --> 00:44:19.180
came from the Long Walk.
00:44:19.180 --> 00:44:22.200
There's that possibility
or theory about that.
00:44:22.200 --> 00:44:23.655
Yeah.
00:44:23.655 --> 00:44:28.860
Any of like grandma or grandma's
mother and dad shared with you?
00:44:28.860 --> 00:44:31.240
Oh, no, uh-uh.
00:44:31.240 --> 00:44:31.740
Nothing?
00:44:31.740 --> 00:44:36.060
They just said they
had that happen,
00:44:36.060 --> 00:44:37.980
you know a long time ago.
00:44:37.980 --> 00:44:39.830
It was not mentioned again.
00:44:39.830 --> 00:44:41.627
I didn't want to
talk about it either.
00:44:41.627 --> 00:44:42.621
Oh, OK.
00:44:42.621 --> 00:44:44.609
[LAUGHING]
00:44:52.561 --> 00:44:55.046
[PEOPLE CHATTING]
00:45:00.016 --> 00:45:02.501
[NON-ENGLISH SPEECH]
00:45:53.790 --> 00:45:57.458
We forgot our culture, you know?
00:45:57.458 --> 00:45:59.938
[NON-ENGLISH SPEECH]
00:46:23.250 --> 00:46:25.730
[WIND BLOWING]
00:46:31.682 --> 00:46:33.170
Morning, you're awake.
00:46:33.170 --> 00:46:35.154
[LEANDRA MOANS]
00:46:35.154 --> 00:46:37.634
[SINGING]
00:46:41.330 --> 00:46:41.830
[INAUDIBLE]
00:46:46.711 --> 00:46:47.960
You gave her medicine already?
00:46:47.960 --> 00:46:48.543
Yeah, already.
00:46:48.543 --> 00:46:49.120
Oh.
00:46:49.120 --> 00:46:51.160
She can eat again about 11:00.
00:46:51.160 --> 00:46:55.570
I mean, give her meds
again, just the orange one.
00:46:55.570 --> 00:46:57.570
[KISSING]
00:46:57.570 --> 00:46:59.046
Love you, sweetie.
00:47:04.420 --> 00:47:06.540
In our way, everything is taboo.
00:47:06.540 --> 00:47:08.330
The Long Walk, you
don't talk about it,
00:47:08.330 --> 00:47:09.740
because a lot of people died.
00:47:09.740 --> 00:47:13.740
And Navajos don't like to talk
about death, because you're
00:47:13.740 --> 00:47:18.850
just set yourself up for
jinxing yourself in that way.
00:47:18.850 --> 00:47:22.590
I don't know if it's
fear or respect.
00:47:22.590 --> 00:47:25.580
But the stories are being
forgotten in that way.
00:47:29.090 --> 00:47:29.590
Hi.
00:47:29.590 --> 00:47:30.320
Hi, I'm Harry.
00:47:30.320 --> 00:47:30.820
Yolanda.
00:47:30.820 --> 00:47:31.497
Hi, I'm very
00:47:31.497 --> 00:47:32.330
Pleased to meet you.
00:47:32.330 --> 00:47:32.890
Yolanda Sandaval.
00:47:32.890 --> 00:47:33.470
Hi.
00:47:33.470 --> 00:47:34.404
My husband, Dorey.
00:47:34.404 --> 00:47:35.070
Hi, how are you?
00:47:35.070 --> 00:47:35.590
How are you doing?
00:47:35.590 --> 00:47:36.650
Pleased to meet you.
00:47:36.650 --> 00:47:42.790
Good, it is the route of
the Long Walk out here.
00:47:42.790 --> 00:47:45.580
We can see the
trucks along I-40.
00:47:45.580 --> 00:47:50.960
And the frontage road over
there is old Route 66.
00:47:50.960 --> 00:47:54.650
If we were standing
here in April of 1864,
00:47:54.650 --> 00:47:58.550
we see Navajo people being
marched down to the Bosque.
00:48:02.040 --> 00:48:06.030
Have your ancestors pretty
much lived, as far as you know,
00:48:06.030 --> 00:48:09.500
in Coyote Canyon?
00:48:09.500 --> 00:48:10.095
Mine, yeah.
00:48:10.095 --> 00:48:10.770
For as far back as you know?
00:48:10.770 --> 00:48:11.820
For my mom it is.
00:48:11.820 --> 00:48:12.370
Your mom?
00:48:12.370 --> 00:48:13.256
Yeah.
00:48:13.256 --> 00:48:15.900
My grandparents came
from Standing Rock.
00:48:15.900 --> 00:48:16.950
Yeah.
00:48:16.950 --> 00:48:17.700
OK.
00:48:17.700 --> 00:48:18.420
OK.
00:48:18.420 --> 00:48:23.880
Well, you were right now
right in the bull's eye
00:48:23.880 --> 00:48:26.990
where the Army was
gathering people.
00:48:26.990 --> 00:48:36.230
Your ancestors, most likely,
were sent to the Bosque
00:48:36.230 --> 00:48:40.880
in 1862, James Carleton becomes
the Military Commander here
00:48:40.880 --> 00:48:45.540
in New Mexico, and initiates a
campaign against Navajo people.
00:48:48.160 --> 00:48:50.430
To the Americans,
the Indian people
00:48:50.430 --> 00:48:54.170
were considered barbarians,
were considered heathens.
00:48:54.170 --> 00:48:57.460
And the only way that you
deal with these Indian people
00:48:57.460 --> 00:48:59.000
was to shoot them,
and kill them.
00:48:59.000 --> 00:49:03.272
And there was no
compromise at all.
00:49:03.272 --> 00:49:05.164
[MUSIC PLAYING]
00:49:09.770 --> 00:49:13.620
OK, General Carleton
sent famed mountain man
00:49:13.620 --> 00:49:17.140
Kit Carson after
the Navajo people.
00:49:17.140 --> 00:49:19.030
Carson and the New
Mexico volunteers
00:49:19.030 --> 00:49:20.880
campaigned against the Navajo.
00:49:20.880 --> 00:49:23.270
They tried to seal
off the water holes.
00:49:23.270 --> 00:49:24.430
They burned all the crops.
00:49:24.430 --> 00:49:26.650
They killed the
stock of the Navajo.
00:49:26.650 --> 00:49:29.980
And whenever they saw
Navajo, they'd kill them too.
00:49:33.230 --> 00:49:36.840
Between 8 and 11,000 Navajo
were captured or surrendered
00:49:36.840 --> 00:49:40.820
and taken down to
the Bosque Redondo.
00:49:40.820 --> 00:49:41.700
The weather was cold.
00:49:41.700 --> 00:49:43.240
The weather was bad.
00:49:43.240 --> 00:49:46.590
The Navajo people
were destitute.
00:49:46.590 --> 00:49:49.560
And when elderly people and
children couldn't keep up,
00:49:49.560 --> 00:49:53.512
troops would fall back
and kill those people.
00:49:56.490 --> 00:49:58.930
And then things are tough
at the Bosque Redondo.
00:49:58.930 --> 00:50:03.700
And thousands die from
diseases and starvation.
00:50:03.700 --> 00:50:06.150
[MUSIC PLAYING]
00:50:13.510 --> 00:50:14.370
Here.
00:50:14.370 --> 00:50:21.520
These guys are they
are all involved
00:50:21.520 --> 00:50:25.250
in the government, and
essential, in the Long Walk.
00:50:25.250 --> 00:50:26.850
This Kit Carson.
00:50:26.850 --> 00:50:29.010
And this Carleton here.
00:50:29.010 --> 00:50:34.450
So Carleton's idea was to
round them up and put them
00:50:34.450 --> 00:50:36.100
on a reservation.
00:50:36.100 --> 00:50:39.280
But also, we got to
Christianize them.
00:50:39.280 --> 00:50:43.130
We've got to make them
part of the mainstream,
00:50:43.130 --> 00:50:47.018
make them part of Americans.
00:50:47.018 --> 00:50:49.413
[BIRDS CHIRPING]
00:50:51.330 --> 00:50:54.930
For the Navajo people, the
Long Walk was their Holocaust.
00:50:54.930 --> 00:50:57.900
The Long Walk was their
baton death march.
00:50:57.900 --> 00:50:59.760
They were different
people after they
00:50:59.760 --> 00:51:05.280
were sent to the Bosque
Redondo and came back home.
00:51:05.280 --> 00:51:08.257
[MUSIC PLAYING]
00:51:14.935 --> 00:51:17.320
[WARNING BELLS RINGING]
00:51:27.800 --> 00:51:30.800
[MUSIC PLAYING]
00:52:21.800 --> 00:52:24.300
[DOGS BARKING]
00:52:27.300 --> 00:52:30.300
Mother.
00:52:30.300 --> 00:52:33.730
When did you get baptized, mom?
00:52:33.730 --> 00:52:35.370
When did I get baptized?
00:52:35.370 --> 00:52:40.052
When I was eight years old,
I was forced to be baptized.
00:52:40.052 --> 00:52:44.150
The LDS missionaries were
all over the place then.
00:52:44.150 --> 00:52:47.300
And they used to
come up-- I know
00:52:47.300 --> 00:52:49.010
they used to come to our house.
00:52:49.010 --> 00:52:51.650
And as soon as you
turned eight years old,
00:52:51.650 --> 00:52:53.150
they threw you in the water.
00:52:53.150 --> 00:52:56.600
[LAUGHS] You were baptized
00:52:56.600 --> 00:52:59.590
and I didn't know too
much about church.
00:52:59.590 --> 00:53:01.570
I didn't know.
00:53:01.570 --> 00:53:06.850
All they did was come over
and give us the gospel lesson.
00:53:06.850 --> 00:53:08.470
But me, I was
raised in Tradition,
00:53:08.470 --> 00:53:11.560
so that's what I believe in.
00:53:11.560 --> 00:53:15.000
And my mom always
tells me that too.
00:53:15.000 --> 00:53:17.330
And she has been
honest, I think.
00:53:17.330 --> 00:53:21.500
She says that church is
the something new that
00:53:21.500 --> 00:53:25.680
and it's a new from the
white people, that's
00:53:25.680 --> 00:53:26.600
what she used to say.
00:53:30.592 --> 00:53:33.087
[MUSIC PLAYING]
00:53:36.580 --> 00:53:43.067
I was 12 or 13 when I chose
not to I went to church,
00:53:43.067 --> 00:53:46.310
and I would see kids
leaving from church
00:53:46.310 --> 00:53:47.558
and getting on this big bus.
00:53:47.558 --> 00:53:50.552
And they were talking about
this placement program.
00:53:55.043 --> 00:53:58.536
They told me about living
with other Anglo-LDS families
00:53:58.536 --> 00:54:02.029
in Salt You would
learn about church,
00:54:02.029 --> 00:54:05.522
and gain a good education.
00:54:05.522 --> 00:54:08.516
I'm like, I want to do that.
00:54:08.516 --> 00:54:09.514
I told my parents.
00:54:09.514 --> 00:54:12.009
I said, I want to go in
the placement program.
00:54:12.009 --> 00:54:15.003
I want to go in the
placement So they finally
00:54:15.003 --> 00:54:17.997
said, OK, we'll let you go
on the placement program.
00:54:23.985 --> 00:54:26.480
They baptized me
for the LDS church.
00:54:26.480 --> 00:54:29.474
And I left for Salt Lake.
00:54:29.474 --> 00:54:32.468
[MUSIC PLAYING]
00:54:35.000 --> 00:54:38.370
I had foster parents
who took care of me.
00:54:38.370 --> 00:54:39.690
And they were good to me.
00:54:49.380 --> 00:54:51.740
When I came back
to the reservation,
00:54:51.740 --> 00:54:54.138
it was really hard for
me to find my identity.
00:54:56.862 --> 00:54:58.860
I talked a lot.
00:54:58.860 --> 00:55:01.150
I didn't dress like anyone else.
00:55:01.150 --> 00:55:02.806
I didn't know my clan.
00:55:02.806 --> 00:55:04.305
And I didn't even
speak my language.
00:55:08.577 --> 00:55:09.410
[NON-ENGLISH SPEECH]
00:55:12.770 --> 00:55:33.020
the
00:55:33.020 --> 00:55:36.300
I still believe
in my Navajo ways.
00:55:36.300 --> 00:55:38.825
Because my grandmother raised
me to be a Traditionalist.
00:55:41.620 --> 00:55:43.910
My mom passed away
when I was like five.
00:55:43.910 --> 00:55:49.280
And then that's when my
grandma adopted me legally.
00:55:49.280 --> 00:55:51.040
She wanted me to
be a Traditionalist
00:55:51.040 --> 00:55:54.690
and kind of like not give
up your Navajo identity.
00:55:58.860 --> 00:56:03.570
But school made it click
into that. [CHUCKLES]
00:56:03.570 --> 00:56:15.240
Because you have to go
to school and learn the
00:56:15.240 --> 00:56:20.320
so when I was 13, I ran
away from my grandma.
00:56:20.320 --> 00:56:23.465
I just lived with people
whoever would let me in.
00:56:23.465 --> 00:56:26.825
Pauline was one of those.
00:56:26.825 --> 00:56:27.799
[SHEEP BAAING]
00:56:27.799 --> 00:56:30.160
Gave me a comfortable
place to stay,
00:56:30.160 --> 00:56:31.475
and never asked for nothing.
00:56:37.840 --> 00:56:40.360
She is more of a
Christian than me.
00:56:40.360 --> 00:56:46.497
So she was hard-wired
that way, I guess.
00:56:46.497 --> 00:56:47.122
[BELLS RINGING]
00:56:47.122 --> 00:56:50.573
They keep running away,
so we put a bell on them.
00:56:50.573 --> 00:56:52.060
[LAUGHS]
00:56:52.060 --> 00:56:53.796
Come on, cowboy.
00:56:53.796 --> 00:56:54.740
[SHEEP BAAS]
00:56:54.740 --> 00:56:57.100
Come on now.
00:56:57.100 --> 00:56:59.770
I told you, he's no good cowboy.
00:56:59.770 --> 00:57:00.852
Where's the rope?
00:57:00.852 --> 00:57:01.736
[DOG BARKING]
00:57:01.736 --> 00:57:04.590
I'll show you an Indian cowboy.
00:57:04.590 --> 00:57:06.075
Woo hoo!
00:57:06.075 --> 00:57:07.065
[SHEEP BAAING]
00:57:07.065 --> 00:57:09.540
Man, these suckers can jump.
00:57:09.540 --> 00:57:10.895
[LAUGHS]
00:57:10.895 --> 00:57:11.520
[BELLS RINGING]
00:57:11.520 --> 00:57:12.103
[SHEEP BAAING]
00:57:12.103 --> 00:57:13.005
Pinheads.
00:57:13.005 --> 00:57:19.756
[LAUGHS] [YELLING] Do
it the old way, Tony.
00:57:19.756 --> 00:57:21.034
[YELLS]
00:57:21.034 --> 00:57:21.890
[LAUGHING]
00:57:21.890 --> 00:57:23.846
[INAUDIBLE]
00:57:23.846 --> 00:57:25.232
[YELLS]
00:57:25.232 --> 00:57:27.080
[INAUDIBLE]
00:57:27.080 --> 00:57:28.220
I got him, dude.
00:57:28.220 --> 00:57:28.970
No, it's pregnant.
00:57:28.970 --> 00:57:31.898
So don't let it bounce
around too much.
00:57:31.898 --> 00:57:33.267
Sorry.
00:57:33.267 --> 00:57:33.850
[DOGS BARKING]
00:57:33.850 --> 00:57:34.990
What's the matter, you?
00:57:34.990 --> 00:57:37.650
[SHEEP BAAING]
00:57:37.650 --> 00:57:39.370
That's one tough sheep, man.
00:57:44.620 --> 00:57:46.830
They put me in a mission
school and didn't
00:57:46.830 --> 00:57:49.910
learn the Navajo culture.
00:57:49.910 --> 00:57:53.710
When I was seven, they
took me to school.
00:57:53.710 --> 00:57:56.000
When my mom and
dad left, I watched
00:57:56.000 --> 00:58:00.090
them drive the wagon around
the oval and then out and gate.
00:58:00.090 --> 00:58:02.430
And I saw them go
way out of town.
00:58:02.430 --> 00:58:03.560
And we all held hands.
00:58:03.560 --> 00:58:05.500
And we went into
the dining room.
00:58:05.500 --> 00:58:10.230
And there was a fork,
and spoon, and a knife.
00:58:10.230 --> 00:58:14.590
And that lady says,
you get this fork.
00:58:14.590 --> 00:58:17.345
And you start eating
your food like this.
00:58:20.630 --> 00:58:24.700
It was an art to keep
your food on the fork.
00:58:24.700 --> 00:58:26.410
Yeah, for the first time?
00:58:26.410 --> 00:58:28.580
Yes, the first time.
00:58:28.580 --> 00:58:29.860
Anyway, we went on.
00:58:29.860 --> 00:58:33.670
The first day in the
classroom was torture.
00:58:33.670 --> 00:58:39.250
There was a being white lady
standing there talking to us.
00:58:39.250 --> 00:58:42.670
I sat there and
just watched her.
00:58:42.670 --> 00:58:44.740
And then the Navajo lady came.
00:58:44.740 --> 00:58:48.030
And she said, she's telling
you this, this, this.
00:58:48.030 --> 00:58:50.330
Within the month,
we were supposed
00:58:50.330 --> 00:58:52.030
to have start talking English.
00:58:52.030 --> 00:58:53.680
Wow.
00:58:53.680 --> 00:58:58.087
And if we didn't, go and
get your mouth washed.
00:58:58.087 --> 00:58:59.021
[DOREY LAUGHS]
00:58:59.021 --> 00:59:02.510
The first part of each
class was religion.
00:59:02.510 --> 00:59:05.070
They taught us
about God, and how
00:59:05.070 --> 00:59:12.900
he brought Jesus so we could get
see And I was so mixed on it.
00:59:12.900 --> 00:59:17.760
I just didn't know which
way to really go until I
00:59:17.760 --> 00:59:20.285
accepted the Lord as my Savior.
00:59:20.285 --> 00:59:25.495
And way down deep, I know
the Lord was always with me.
00:59:25.495 --> 00:59:27.467
[MUSIC PLAYING]
00:59:41.800 --> 00:59:43.780
When I was little,
people always wanted
00:59:43.780 --> 00:59:46.690
to be cowboys and not Indians.
00:59:46.690 --> 00:59:47.240
Why?
00:59:47.240 --> 00:59:50.820
Because cowboys always win.
00:59:50.820 --> 00:59:55.310
[LAUGHS] But we're Navajos.
00:59:55.310 --> 00:59:58.450
That's what the government
had planned for us.
00:59:58.450 --> 01:00:03.450
They planted the seed
from the Long Walk.
01:00:03.450 --> 01:00:07.250
They're going extinct our
culture, maybe not tomorrow,
01:00:07.250 --> 01:00:10.100
but slowly.
01:00:10.100 --> 01:00:13.776
We're conquered people, come on.
01:00:13.776 --> 01:00:16.246
[MUSIC PLAYING]
01:00:19.704 --> 01:00:22.668
[TYPING]
01:00:24.160 --> 01:00:25.740
Hello, Doctor Erickson.
01:00:25.740 --> 01:00:30.770
My name is Yolanda Sandoval,
parent of a child who has XP.
01:00:30.770 --> 01:00:34.760
And we reside on the
Navajo reservation.
01:00:34.760 --> 01:00:37.310
I know you have done some
research and some writing
01:00:37.310 --> 01:00:40.300
about disorders in
relation to the Long Walk.
01:00:40.300 --> 01:00:43.890
And I'm wondering if
you have heard of XP.
01:00:43.890 --> 01:00:47.820
I also know that you will be
at the Genetics Conference
01:00:47.820 --> 01:00:49.580
in Shiprock on April 3rd.
01:00:49.580 --> 01:00:51.550
And I would like to
get together with you
01:00:51.550 --> 01:00:53.890
and discuss this disorder.
01:00:53.890 --> 01:00:55.460
I really hope that
you can help us
01:00:55.460 --> 01:00:59.400
understand why and how our
children, and other Navajo
01:00:59.400 --> 01:01:02.180
kids, have XP.
01:01:02.180 --> 01:01:04.060
Sound good?
01:01:04.060 --> 01:01:05.020
Yeah.
01:01:05.020 --> 01:01:07.166
Or is there something
else we should add?
01:01:07.166 --> 01:01:10.837
No, I think they would rather
read something short and sweet
01:01:10.837 --> 01:01:11.920
than something whole page.
01:01:11.920 --> 01:01:14.878
Long.
01:01:14.878 --> 01:01:17.343
[MUSIC PLAYING]
01:01:29.175 --> 01:01:31.640
[SIRENS BLARING]
01:01:33.650 --> 01:01:35.156
I'm Yolanda.
01:01:35.156 --> 01:01:35.980
Nice to meet you.
01:01:35.980 --> 01:01:37.230
And this is my husband, Dorey.
01:01:37.230 --> 01:01:40.130
Hi, good to meet you.
01:01:40.130 --> 01:01:43.080
We had two kept with
xeroderma, the XP.
01:01:43.080 --> 01:01:46.050
And you know of
some other families?
01:01:46.050 --> 01:01:48.450
Yeah, there's like two other
families I connected with.
01:01:48.450 --> 01:01:50.800
They lived on the
reservation also.
01:01:50.800 --> 01:01:55.450
OK, well, this is a disease
that's one in 1 million.
01:01:55.450 --> 01:01:58.740
So if there are three
different families with that
01:01:58.740 --> 01:02:01.860
here in the eastern
Navajo reservation,
01:02:01.860 --> 01:02:04.120
it's because of the Long Walk.
01:02:04.120 --> 01:02:06.336
Yeah, we've heard about that.
01:02:06.336 --> 01:02:08.780
But we couldn't figure
out the connection.
01:02:08.780 --> 01:02:12.580
OK, well, think about the
history of the Navajo.
01:02:12.580 --> 01:02:15.860
That went through
genetic bottleneck.
01:02:15.860 --> 01:02:19.780
The population, probably
before the white man came,
01:02:19.780 --> 01:02:24.970
there were probably
20,000, 25,000 Navajo.
01:02:24.970 --> 01:02:30.370
Kit Carson and the US
Army basically drove them
01:02:30.370 --> 01:02:33.780
into a concentration camp.
01:02:33.780 --> 01:02:36.540
In that camp, there
wasn't enough food.
01:02:36.540 --> 01:02:38.820
People died of starvation.
01:02:38.820 --> 01:02:40.900
There was smallpox.
01:02:40.900 --> 01:02:44.000
And so what had
started out, I think
01:02:44.000 --> 01:02:49.920
on the order 8,000,
10,000, decrease to 5,000.
01:02:49.920 --> 01:02:52.930
And as I say, only
2,000 would be what
01:02:52.930 --> 01:02:55.160
we would call breeding adults.
01:02:55.160 --> 01:02:57.450
So now a quarter
million Navajos are all
01:02:57.450 --> 01:03:00.420
descended from 2,000 people.
01:03:00.420 --> 01:03:03.060
So they only had those
recessive genes that
01:03:03.060 --> 01:03:05.350
were in those 2,000 people.
01:03:05.350 --> 01:03:07.430
And of course,
that's why it's taken
01:03:07.430 --> 01:03:09.560
so long to show up in a sense.
01:03:09.560 --> 01:03:12.960
Because you always
marry outside your clan,
01:03:12.960 --> 01:03:16.340
that's a good step to
decrease that chance
01:03:16.340 --> 01:03:19.063
of marrying a carrier.
01:03:19.063 --> 01:03:21.550
Yeah, because Dorey and
I have the same clan.
01:03:21.550 --> 01:03:22.775
Oh, OK, well.
01:03:22.775 --> 01:03:23.990
And so--
01:03:23.990 --> 01:03:25.000
The mother's side.
01:03:25.000 --> 01:03:26.560
The mother's side, yeah.
01:03:26.560 --> 01:03:29.980
So that increases-- if
you're on my mother's
01:03:29.980 --> 01:03:34.190
side on the same clan, you might
be third or fourth cousins.
01:03:34.190 --> 01:03:36.880
Now the chance of
sharing genes goes
01:03:36.880 --> 01:03:39.680
way, way down at third
or fourth cousins,
01:03:39.680 --> 01:03:42.760
but still slightly increased.
01:03:42.760 --> 01:03:44.060
Then our culture don't help.
01:03:44.060 --> 01:03:45.360
Because that's where it stops.
01:03:45.360 --> 01:03:46.693
It's like, you guys are related.
01:03:46.693 --> 01:03:48.510
That's why you have
kids like this.
01:03:48.510 --> 01:03:50.170
Yeah, well, that's [INAUDIBLE].
01:03:50.170 --> 01:03:54.850
We all carry, everybody
carries, recessive genes.
01:03:54.850 --> 01:03:59.130
But if a group, like the Navajo,
went through bottlenecks,
01:03:59.130 --> 01:04:02.010
then the chance of somebody
carrying the same gene
01:04:02.010 --> 01:04:03.372
is a little higher.
01:04:03.372 --> 01:04:06.130
And that's nothing you did.
01:04:06.130 --> 01:04:07.780
It's nothing you can prevent.
01:04:07.780 --> 01:04:14.330
To be human is to
carry recessive genes.
01:04:14.330 --> 01:04:16.823
[INSECTS CHIRPING]
01:04:16.823 --> 01:04:19.288
[THUNDER ROARING]
01:04:24.711 --> 01:04:26.190
[MACHINE CLICKS]
01:04:26.190 --> 01:04:27.669
Baby girl.
01:04:27.669 --> 01:04:29.641
Mommy's home.
01:04:29.641 --> 01:04:30.627
Hi, sweetie.
01:04:33.585 --> 01:04:38.184
[KISSING] I love you.
01:04:38.184 --> 01:04:41.670
[SIGHS]
01:04:41.670 --> 01:04:44.160
[WIND BLOWING]
01:04:51.132 --> 01:04:53.124
[THUNDER ROARING]
01:05:10.554 --> 01:05:13.044
[MUSIC PLAYING]
01:05:24.498 --> 01:05:26.988
[DOOR BANGING]
01:05:31.470 --> 01:05:33.960
[CHAIR ROCKING]
01:05:51.040 --> 01:05:52.436
I had a bad dream.
01:05:52.436 --> 01:05:55.560
It was a dream about
the dark spirit.
01:05:55.560 --> 01:05:58.316
It was holding me down, but
yet it was circling Leandra.
01:06:02.050 --> 01:06:05.480
I was trying to do something
as far as like get it away,
01:06:05.480 --> 01:06:07.690
because it didn't want
it hurting Leandra.
01:06:07.690 --> 01:06:09.910
Because I knew she
would by me in bed.
01:06:09.910 --> 01:06:11.242
But I couldn't move.
01:06:11.242 --> 01:06:14.190
And I couldn't scream.
01:06:14.190 --> 01:06:16.520
And I popped out of my dream.
01:06:16.520 --> 01:06:19.840
And I knew that spirit was here.
01:06:19.840 --> 01:06:20.955
And I knew it was around.
01:06:24.340 --> 01:06:26.654
I'm like, Dorey, Dorey, wake up!
01:06:26.654 --> 01:06:27.570
He's like, what, what?
01:06:27.570 --> 01:06:31.060
I go, I feel like there's
something in the house.
01:06:31.060 --> 01:06:32.490
There's a spirit in the house.
01:06:32.490 --> 01:06:34.726
And I know it's here
to hurt Leandra.
01:06:37.540 --> 01:06:38.800
And so he got up.
01:06:38.800 --> 01:06:41.080
And then he turned on
the light, looked around.
01:06:41.080 --> 01:06:41.980
He said, nothing.
01:06:47.370 --> 01:06:49.433
But I still had
that feeling in me
01:06:49.433 --> 01:06:51.968
that Leandra was ready to go.
01:06:54.660 --> 01:06:57.820
And I was trying to push it out
of my head that, it's not true.
01:06:57.820 --> 01:06:58.409
It's not true.
01:06:58.409 --> 01:06:59.450
It's not going to happen.
01:06:59.450 --> 01:07:02.370
It's not going to happen.
01:07:02.370 --> 01:07:03.820
But I knew she was ready to go.
01:07:09.254 --> 01:07:11.724
[MACHINES BEEPING]
01:07:15.182 --> 01:07:17.158
You want that crap
out of your mouth?
01:07:17.158 --> 01:07:19.134
What's this thing
under her throat?
01:07:19.134 --> 01:07:21.110
Is that something?
01:07:21.110 --> 01:07:23.086
Who can suction her?
01:07:29.014 --> 01:07:31.484
[ANNOUNCEMENT OVER THE
LOUDSPEAKER]
01:07:44.448 --> 01:07:46.940
[DOOR SLAMS]
01:07:46.940 --> 01:07:48.946
[NON-ENGLISH SPEECH]
01:08:33.433 --> 01:08:35.928
[MACHINES BEEPING]
01:08:58.882 --> 01:09:00.878
[MACHINE FLAT LINES]
01:09:13.852 --> 01:09:16.846
[WATER FLOWING]
01:09:16.846 --> 01:09:19.840
[MUSIC PLAYING]
01:10:40.678 --> 01:10:43.173
[ENGINE WHIRRING]
01:10:46.167 --> 01:10:48.662
[ENGINE SCREECHES]
01:10:58.143 --> 01:11:00.638
[METAL CLANKING]
01:11:18.103 --> 01:11:20.598
[NON-ENGLISH SPEECH]
01:11:43.790 --> 01:11:44.770
Good evening.
01:11:44.770 --> 01:11:47.100
I appreciate the
opportunity as a priest
01:11:47.100 --> 01:11:51.045
at [INAUDIBLE] Church of
Jesus Christ the Latter Day
01:11:51.045 --> 01:11:58.070
Saints exercise that authority
and be of comfort and assurance
01:11:58.070 --> 01:11:59.370
to the family.
01:11:59.370 --> 01:12:04.460
With my faith in Jesus
Christ and our Savior,
01:12:04.460 --> 01:12:09.040
I know that she flew away
on the wings of angels,
01:12:09.040 --> 01:12:13.390
and walks with the loved
ones that waited for her.
01:12:13.390 --> 01:12:16.310
And she walked with Heavenly
Father. and with Jesus Christ
01:12:16.310 --> 01:12:17.750
once again.
01:12:17.750 --> 01:12:20.490
And I bring you this testimony
in the name of thy loving son,
01:12:20.490 --> 01:12:22.074
Jesus right
01:12:22.074 --> 01:12:22.574
Amen.
01:12:26.478 --> 01:12:30.090
Our gracious Heavenly Father,
we thank you for the opportunity
01:12:30.090 --> 01:12:32.230
to come together.
01:12:32.230 --> 01:12:36.490
We ask that thy spirit rests
upon us and upon the family,
01:12:36.490 --> 01:12:40.070
that their hearts be
softened, that they may feel,
01:12:40.070 --> 01:12:42.386
and know, and
understand the meaning
01:12:42.386 --> 01:12:47.376
of this event in their
lives, that that they
01:12:47.376 --> 01:12:51.867
may be able to walk upright--
01:12:51.867 --> 01:12:54.362
[MUSIC PLAYING]
01:13:11.827 --> 01:13:12.840
[BEER POURING]
01:13:12.840 --> 01:13:15.160
American beer.
01:13:15.160 --> 01:13:18.490
American is sweet.
01:13:18.490 --> 01:13:20.050
I like sweet.
01:13:20.050 --> 01:13:23.315
Because I say I'm an American
Indian, motherfucker.
01:13:28.460 --> 01:13:31.290
[DRINKING] Ah.
01:13:31.290 --> 01:13:36.600
American Indian, American
cupboard, American house.
01:13:36.600 --> 01:13:39.310
And I'm going to eat
and American burger.
01:13:43.765 --> 01:13:45.745
[WASHING MACHINE BEEPING]
01:13:48.230 --> 01:13:49.720
Lucky my kids don't see this.
01:13:52.330 --> 01:14:01.590
[DRINKING] I had my life
on hold for 16, 17 years.
01:14:01.590 --> 01:14:06.590
And I think that proved
me to say, fuck, man.
01:14:06.590 --> 01:14:09.440
I love my kids.
01:14:09.440 --> 01:14:10.820
Now they're dead.
01:14:10.820 --> 01:14:11.620
Fuck it.
01:14:11.620 --> 01:14:12.900
Now it's my life.
01:14:12.900 --> 01:14:15.472
So what the fuck do I care?
01:14:18.670 --> 01:14:20.510
I mean, that's what I
tell her this morning,
01:14:20.510 --> 01:14:23.790
like, what the fuck you
feeling sorry for, man?
01:14:23.790 --> 01:14:25.550
They're up there.
01:14:25.550 --> 01:14:27.620
They have a tribe.
01:14:27.620 --> 01:14:30.480
They're more loved than here.
01:14:30.480 --> 01:14:35.520
And we;re pathetic, living
on and clinging on to life.
01:14:35.520 --> 01:14:39.145
But if you talk to me,
you're up there with a tribe.
01:14:43.000 --> 01:14:44.972
They're with the chief.
01:14:44.972 --> 01:14:49.580
They're with all the
good people that went.
01:14:49.580 --> 01:14:52.670
We're pathetic here.
01:14:52.670 --> 01:14:57.590
We don't know we just talk.
01:14:57.590 --> 01:14:59.820
We just live.
01:14:59.820 --> 01:15:02.980
We just carry on.
01:15:02.980 --> 01:15:06.930
Why don't we cry when
we kill a flower?
01:15:06.930 --> 01:15:10.410
Why don't we cry
when we kill a deer?
01:15:10.410 --> 01:15:16.200
Why don't we cry when
we fuck up Mother Earth?
01:15:16.200 --> 01:15:19.370
We just leave it, don't
cry, carry on like nothing.
01:15:19.370 --> 01:15:21.740
But when we lose a
family member, fucking we
01:15:21.740 --> 01:15:23.550
cry like we're special.
01:15:28.950 --> 01:15:30.346
My kids are gone.
01:15:34.210 --> 01:15:40.490
Best I can do is speak for
their memory, their existence.
01:15:40.490 --> 01:15:44.390
That's all I can leave.
01:15:44.390 --> 01:15:49.190
It'd be an honor
for me to do it,
01:15:49.190 --> 01:15:52.148
to continue that fucking
battle, even though I
01:15:52.148 --> 01:15:54.394
don't have kids to do it for.
01:16:05.372 --> 01:16:08.366
[MUSIC PLAYING]
01:17:07.746 --> 01:17:08.246
Shh.
01:17:14.733 --> 01:17:17.144
You can go to sleep.
01:17:17.144 --> 01:17:17.727
[GIRL BABBLES]
01:17:17.727 --> 01:17:20.221
[LAUGHING]
01:17:20.221 --> 01:17:20.721
[KISSES]
01:17:20.721 --> 01:17:23.216
Thank you.
01:17:23.216 --> 01:17:24.214
Thank you.
01:17:28.705 --> 01:17:31.200
Yay!
01:17:31.200 --> 01:17:35.691
Woo, that was hard work.
01:17:35.691 --> 01:17:36.689
Hi, honey.
01:17:39.683 --> 01:17:41.180
I guess these guys are doing OK.
01:17:41.180 --> 01:17:45.172
Lane's doing OK.
01:17:45.172 --> 01:17:47.667
It's been really tough for me.
01:17:50.661 --> 01:17:54.154
It's so good to see the kids.
01:17:54.154 --> 01:17:56.649
[MUSIC PLAYING]
01:18:10.122 --> 01:18:11.120
[BOY EXCLAIMS]
01:18:11.120 --> 01:18:15.611
[GASPS] Is it time to go out?
01:18:15.611 --> 01:18:17.108
[BOY BABBLES]
01:18:17.108 --> 01:18:19.104
It's kind of cold tonight.
01:18:44.553 --> 01:18:46.549
[YOLANDA CRYING]
01:19:05.511 --> 01:19:07.507
[WATER SPLASHING]
01:19:56.908 --> 01:19:58.904
[WIND BLOWING]
01:20:03.395 --> 01:20:05.391
[YOLANDA SNIFFLING]
01:20:08.385 --> 01:20:10.880
[MUSIC PLAYING]
01:20:21.359 --> 01:20:24.643
Hello, boy.
01:20:24.643 --> 01:20:25.351
[HORSES NEIGHING]
01:20:25.351 --> 01:20:26.267
[INAUDIBLE] Come here.
01:20:33.990 --> 01:20:40.040
[INAUDIBLE] Can't even
see that shit no more.
01:20:40.040 --> 01:20:42.859
I can still ride,
it's just trying
01:20:42.859 --> 01:20:46.108
to ride like a Mongolian.
01:20:46.108 --> 01:20:48.603
Horse is too small
for you. [LAUGHS]
01:20:48.603 --> 01:20:49.601
I know.
01:20:49.601 --> 01:20:53.094
See, I'm a Mongolian. [CHUCKLES]
01:20:53.094 --> 01:20:55.589
Follow the leader.
01:20:55.589 --> 01:20:57.585
Follow the leader.
01:20:57.585 --> 01:21:00.080
She's my leader.
01:21:00.080 --> 01:21:02.575
[MUSIC PLAYING]
01:21:08.563 --> 01:21:10.060
[DOREY YELLS]
01:21:10.060 --> 01:21:11.557
My boys!
01:21:11.557 --> 01:21:16.547
I don't want to have
heuvos rancheros.
01:21:16.547 --> 01:21:19.042
Come on, horse.
01:21:19.042 --> 01:21:21.537
[MUSIC PLAYING]
01:21:24.032 --> 01:21:26.527
[CLICKING TONGUE]
01:21:35.020 --> 01:21:36.520
[HORSES TROTTING]
01:21:38.920 --> 01:21:41.970
[MUSIC PLAYING]
Distributor: Bullfrog Films
Length: 85 minutes
Date: 2012
Genre: Expository
Language: English; Navajo
Grade: 10-12, College, Adults
Color/BW:
Closed Captioning: Available
Interactive Transcript: Available
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